Localized scleroderma

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ORPHA:90289L94.0
Who is this for?
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37Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Stiff skinHP:0030053Cutaneous sclerotic plaqueHP:0031359Abnormal upper lip morphologyHP:0000177Patchy alopeciaHP:0002232
Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events
Oct 2024Study on the Efficacy of Autologous Fat Grafting in Improving Hair Transplantation Outcomes for Patients With Localized Scleroderma-Related Alopecia

Nanfang Hospital, Southern Medical University — NA

TrialNOT YET RECRUITING
Jun 2021Patient Reported Outcomes With UVA-1 Therapy for Treatment of Sclerosing Skin Diseases

University of Utah — NA

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Localized scleroderma.

View clinical trials →

No actively recruiting trials found for Localized scleroderma at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Localized scleroderma community →

Specialists

Showing 25 of 37View all specialists →
YP
Yen Chen, PhD
Specialist
PI on 1 active trial
JM
Judith Löffler-Ragg, Prof. MD
Specialist
PI on 1 active trial
GH
Gerd Horneff
Specialist
1 Localized scleroderma publication
RL
Robert Lafyatis
BOSTON, MA
Specialist
2 Localized scleroderma publications
TH
Theresa Hutchins
HOLLAND, MI
Specialist
2 Localized scleroderma publications
KT
Kathryn S Torok
PITTSBURGH, PA
Specialist
5 Localized scleroderma publications
SL
Suzanne C Li
Specialist
2 Localized scleroderma publications
HJ
Heidi Jacobe
DALLAS, TX
Specialist
2 Localized scleroderma publications
GW
Giffin Werner
Specialist
2 Localized scleroderma publications
TT
Tracy Tabib
Specialist
2 Localized scleroderma publications
AS
Anwesha Sanyal
Specialist
2 Localized scleroderma publications
AH
Andreas Hammacher
Specialist
1 Localized scleroderma publication
EM
Elena Pope, MD
SANTA FE, NM
Specialist
PI on 4 active trials
LM
Lisa Weibel, MD
Specialist
PI on 1 active trial
LM
Laura Schanberg, MD
DURHAM, NC
Specialist
PI on 2 active trials
AP
Alain TAIEB, Pr.
Specialist
PI on 1 active trial
SD
Sabine Eming, Prof. Dr.
Specialist
PI on 1 active trial
AP
Alian TAIEB, Pr.
Specialist
PI on 1 active trial
FP
Filip De Keyser, MD, PhD
Specialist
PI on 2 active trials
CM
Christy Sandborg, MD
PALO ALTO, CA
Specialist
PI on 1 active trial
BM
Brian Drolet, MD
NASHVILLE, TN
Specialist
PI on 1 active trial
UM
Ulrike Blume-Peytavi, Prof. MD
Specialist
PI on 1 active trial
SM
Sewon Kang, MD
BALTIMORE, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Localized scleroderma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Localized scleroderma

No recent news articles for Localized scleroderma.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Localized scleroderma

Which specialists treat Localized scleroderma?

25 specialists and care centers treating Localized scleroderma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.