Lichen planopilaris

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1Active trials8Specialists8Treatment centers

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Overview

Lichen planopilaris (LPP) is a rare inflammatory condition that attacks the hair follicles on the scalp, causing permanent hair loss in patches. It is considered a form of scarring alopecia, which means the hair follicles are destroyed and replaced by scar tissue, so the hair cannot grow back in affected areas. The condition is related to lichen planus, a broader skin and mucous membrane disorder, but LPP specifically targets the scalp. Some people also hear it called follicular lichen planus. The main symptoms include itching, burning, and tenderness on the scalp, along with redness and scaling around individual hair follicles. Over time, smooth, pale, or shiny bald patches develop where the follicles have been permanently damaged. In some cases, LPP can affect the hairline at the front of the scalp — a variant called frontal fibrosing alopecia — or cause widespread thinning. There is no cure for LPP, but treatments aim to reduce inflammation, relieve symptoms, and slow or stop further hair loss. Options include topical and injected corticosteroids, antimalarial drugs like hydroxychloroquine, and other anti-inflammatory medications. Early diagnosis and treatment give the best chance of preserving remaining hair.

Also known as:

Key symptoms:

Itching or burning sensation on the scalpTenderness or pain on the scalpRedness around the base of hair folliclesScaling or flaking around individual hairsPatchy hair loss that does not grow backSmooth, shiny, or pale bald patches on the scalpReceding hairline (especially in the frontal fibrosing alopecia variant)Loss of eyebrows or eyelashes in some casesSkin texture changes in bald areasOccasionally, similar lesions on other parts of the body or inside the mouth

Clinical phenotype terms (15)— hover any for plain English
PterygiumHP:0001059OnycholysisHP:0001806Abnormal intestine morphologyHP:0002242Neoplasm of the oral cavityHP:0100649LichenificationHP:0100725
Inheritance

Multifactorial

Caused by a mix of several genes and environmental factors

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Feb 2026Nemolizumab to Treat Lichen Planopilaris, a Noncontrolled, Prospective, Pilot Study.

The Skin Center Dermatology Group — PHASE4

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Lichen planopilaris.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →
Phase 41 trial
Nemolizumab to Treat Lichen Planopilaris, a Noncontrolled, Prospective, Pilot Study.
Phase 4
Actively Recruiting
· Sites: New City, New York · Age: 1899 yrs

Specialists

8 foundView all specialists →
DP
DirkJan Hijnen, MD, PhD
Specialist
PI on 2 active trials
MM
Maria K Hordinsky, MD
MINNEAPOLIS, MN
Specialist
PI on 3 active trials
JM
Jason Sluzevich, MD
JACKSONVILLE, FL
Specialist
PI on 1 active trial
EP
Emma Guttman-Yassky, MD, PhD
Specialist
PI on 4 active trials
AM
Aaron Mangold, MD
SCOTTSDALE, AZ
Specialist
PI on 3 active trials1 Lichen planopilaris publication
CM
Chinmanat Lekhavat, MD
Specialist
PI on 3 active trials
AM
Amy McMichael, MD
COVINA, CA
Specialist
PI on 3 active trials1 Lichen planopilaris publication
BM
Brian Drolet, MD
NASHVILLE, TN
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Lichen planopilaris.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Lichen planopilaris

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.How active is my disease right now, and how quickly might it progress without treatment?,Which treatment do you recommend for me, and how long before I might see results?,Are there any side effects I should watch for with the medications you are prescribing?,How often should I come back for check-ups, and what signs should prompt me to call sooner?,Is there anything I can do at home — such as avoiding certain products or activities — to help slow the disease?,Are there any clinical trials or newer treatments I should know about?,Should I see a mental health professional or join a support group to help cope with hair loss?

Common questions about Lichen planopilaris

What is Lichen planopilaris?

Lichen planopilaris (LPP) is a rare inflammatory condition that attacks the hair follicles on the scalp, causing permanent hair loss in patches. It is considered a form of scarring alopecia, which means the hair follicles are destroyed and replaced by scar tissue, so the hair cannot grow back in affected areas. The condition is related to lichen planus, a broader skin and mucous membrane disorder, but LPP specifically targets the scalp. Some people also hear it called follicular lichen planus. The main symptoms include itching, burning, and tenderness on the scalp, along with redness and scal

How is Lichen planopilaris inherited?

Lichen planopilaris follows a multifactorial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Lichen planopilaris typically begin?

Typical onset of Lichen planopilaris is adult. Age of onset can vary across affected individuals.

Are there clinical trials for Lichen planopilaris?

Yes — 1 recruiting clinical trial is currently listed for Lichen planopilaris on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Lichen planopilaris?

8 specialists and care centers treating Lichen planopilaris are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.