Hinman syndrome

Last reviewed

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ORPHA:84085N32.8
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Show terms as
1FDA treatments2Active trials18Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

HASHSHinman-Allen syndromeNon-neurogenic neurogenic bladderOccult neuropathic bladder

Clinical phenotype terms— hover any for plain English:

EnuresisHP:0000805Urinary bladder wall hypertrophyHP:0008635Bladder trabeculationHP:0032465EncopresisHP:0040183Flank painHP:0030157Abnormal lumbar spine morphologyHP:0100712
Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events
Sep 2026The Effect of Nitrogen Narcosis on Motor Performance in Divers Who Have Sustained an Inner Ear Decompression Illness

University of Plymouth

TrialNOT YET RECRUITING
Apr 2026Remibrutinib Open Label Roll-over Post-trial Access Protocol

Novartis Pharmaceuticals — PHASE3

TrialNOT YET RECRUITING
Mar 2026Testing the Safety of the Anti-cancer Drug, Sn-117m-DTPA, for Advanced Cancers That Have Spread to Bones

National Cancer Institute (NCI) — PHASE1

TrialNOT YET RECRUITING
Feb 2026Safety, Tolerability and Preliminary Efficacy of NEUK203-13 in Refractory Neuroendocrine Tumor Patients

Cancer Institute and Hospital, Chinese Academy of Medical Sciences — PHASE1

TrialNOT YET RECRUITING
Feb 2026Efficacy and Safety of Tirzepatide Once Weekly Versus Placebo in Participants Who Are Either Obese or Overweight With Weight-Related Comorbidities (SURMOUNT-1)

Hudson Biotech — PHASE3

TrialRECRUITING
Feb 2026Efficacy of Gabapentin Combined With Solifenacin for Non-neurogenic Overactive Bladder in Women

Mansoura University — PHASE3

TrialNOT YET RECRUITING
Dec 2025A Clinical Trial Testing the Safety of BNT327 (an Investigational Drug) and How Well it Works When Combined With Chemotherapy for People Who Have Not Been Treated Yet for Pancreatic Cancer

BioNTech SE — PHASE2

TrialRECRUITING
Oct 2025Define Final Selection Choice Criteria for a Coloplast Catheter Ensuring Highest Patient Satisfaction Via Surveys (EVA).

Coloplast NV/SA — NA

TrialRECRUITING
Aug 2025Study of TYK-00540 Combined With Enzalutamide in Patients With Metastatic Castration-resistant Prostate Cancer（mCRPC）

TYK Medicines, Inc — PHASE1, PHASE2

TrialNOT YET RECRUITING
Jul 2025A Study to Evaluate the Safety of Dostarlimab in Adult Participants in India With Recurrent or Advanced Endometrial Cancer (EC)

GlaxoSmithKline — PHASE4

TrialNOT YET RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

MEPRON

ATOVAQUONE· GlaxoSmithKline LLC

Treatment of mild-to-moderate PCP in adults and adolescents aged 13 years and older who cannot tolerate TMP-SMX

View Details →FDA Label ↗

Clinical Trials

2 recruitingView all trials with filters →
N/A1 trial
Below the Belt: Non-invasive Neuromodulation to Treat Bladder, Bowel, and Sexual Dysfunction Following Spinal Cord Injury
N/A
Actively Recruiting
PI: Andrei Krassioukov, MD,PhD,FRCPC (University of British Columbia) · Sites: Vancouver, British Columbia; Vancouver, British Columbia · Age: 18–65 yrs
View on ClinicalTrials.gov ↗I'm interested →
Other1 trial
Continence Care Registry
Active
PI: Jessica Simmons, DNP, APRN, FNP-C, CWON, DNC (Hollister Incorporated) · Sites: Libertyville, Illinois · Age: 18–99 yrs
View on ClinicalTrials.gov ↗I'm interested →

Specialists

18 foundView all specialists →
GL
Global Clinical Leader
Specialist
PI on 44 active trials4 Hinman syndrome publications
HM
Helen McShane
Specialist
PI on 13 active trials2 Hinman syndrome publications
MS
Mikhail Samsonov
Specialist
PI on 17 active trials
BP
BioNTech Responsible Person
Specialist
PI on 18 active trials
LH
Leona Holmberg
SEATTLE, WA
Specialist
PI on 8 active trials
CM
Charles Theuer, MD
SAN DIEGO, CA
Specialist
PI on 3 active trials
MM
Michael Kurman, MD
Specialist
PI on 6 active trials
ER
Emilie Rohmer
Specialist
PI on 7 active trials
IC
ICD CSD
Specialist
PI on 17 active trials
HM
Hann-Chorng Kuo, M.D.
Specialist
PI on 6 active trials
BI
Boehringer Ingelheim
Peoria, Arizona
Specialist

Rare Disease Specialist

PI on 123 active trials
DM
Deirdre Cohen, MD
TUCSON, AZ
Specialist
PI on 2 active trials
LH
Lily Hu
TAUNTON, MA
Specialist
PI on 3 active trials158 Hinman syndrome publications
UD
Ulrich Mehnert, Dr.
Specialist
PI on 1 active trial
SP
Shuhang wang, PhD
Beijing, Beijing Municipality
Specialist

Rare Disease Specialist

PI on 3 active trials
KM
Katherine N Moore
Specialist
PI on 1 active trial
JD
Jessica Simmons, DNP, APRN, FNP-C, CWON, DNC
Specialist
PI on 1 active trial
AK
Andrei Krassioukov
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Hinman syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Hinman syndrome

Disease timeline:

New recruiting trial: Effects of Microbiological and Immunological Factors on the Lower Urinary Tract

A new clinical trial is recruiting patients for Hinman syndrome

New recruiting trial: Below the Belt: Non-invasive Neuromodulation to Treat Bladder, Bowel, and Sexual Dysfunction Following Spinal Cord Injury

A new clinical trial is recruiting patients for Hinman syndrome

New recruiting trial: UCon Treatment of Overactive Bladder (OAB) in Males

A new clinical trial is recruiting patients for Hinman syndrome

New recruiting trial: Define Final Selection Choice Criteria for a Coloplast Catheter Ensuring Highest Patient Satisfaction Via Surveys (EVA).

A new clinical trial is recruiting patients for Hinman syndrome

New recruiting trial: Non-invasive Spinal Cord Stimulation for Recovery of Autonomic Function After Spinal Cord Injury

A new clinical trial is recruiting patients for Hinman syndrome

New recruiting trial: Interest of Morphokinetic Parameters of Early Embryonic Development in the Birth Rates in Vitro Fertilization

A new clinical trial is recruiting patients for Hinman syndrome

New recruiting trial: Isolation of Human Recombinant Therapeutic Monoclonal Anti-Pseudomonas Antibodies

A new clinical trial is recruiting patients for Hinman syndrome

New recruiting trial: Integrative Couple Treatment for Gambling/Substance Use Disorder

A new clinical trial is recruiting patients for Hinman syndrome

New recruiting trial: CAR T-cell Therapy Targeting CD19 and BCMA in Patients with AIHA Who Have Failed ≥3 Lines of Therapy.

A new clinical trial is recruiting patients for Hinman syndrome

New recruiting trial: Screening for Anal Cancer in Men Who Have Sex With Men Using Pre-Exposure Prophylaxis

A new clinical trial is recruiting patients for Hinman syndrome

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Hinman syndrome

Are there clinical trials for Hinman syndrome?

Yes — 2 recruiting clinical trials are currently listed for Hinman syndrome on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Hinman syndrome?

18 specialists and care centers treating Hinman syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.