Digestive tract malformation

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ORPHA:98039
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27Specialists8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

3 events
Jan 2026Impact of B. Adolescentis iVS-1 Probiotic on Gastrointestinal Outcomes

Synbiotic Health — NA

TrialRECRUITING
Sep 2025BioAmicus Complete for Functional Gastrointestinal Symptoms in Infants Aged 0 to 24 Months

Haiphong University of Medicine and Pharmacy — NA

TrialRECRUITING
Apr 2024Cognitive-behavioral Therapy for the Diseases Associated With Esophageal-brain-gut Axis Communication Abnormalities.

Hualien Tzu Chi General Hospital — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Digestive tract malformation.

View clinical trials →

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Digestive tract malformation at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Digestive tract malformation community →

Specialists

Showing 25 of 27View all specialists →
MM
Maria Luisa Bianchi, M.D.
NORTH PROVIDENCE, RI
Specialist
PI on 2 active trials
CP
Cecil Charles, PhD
Specialist
PI on 3 active trials
ID
Ipsen Medical, Director
Specialist
PI on 5 active trials
ZM
Zsofia Stadler, MD
BOSTON, MA
Specialist
PI on 3 active trials
FP
Ferenc Karpati, MD, PhD
Specialist
PI on 2 active trials
MP
Meral BOŞNAK GÜÇLÜ, Prof.Dr.
Specialist
PI on 3 active trials
DM
Divyesh V Sejpal, MD
PHOENIX, AZ
Specialist
PI on 1 active trial
MM
Michael Konstan, MD
CLEVELAND, OH
Specialist
PI on 1 active trial
MH
Margaret Hodson
BUFFALO, NY
Specialist
PI on 1 active trial4 Digestive tract malformation publications
TM
Temitayo Ajayi, MD
Specialist
PI on 1 active trial
AD
Anne Munck, Dr
Specialist
PI on 1 active trial
SM
Sonia Volpi, MD
Specialist
PI on 1 active trial
CB
Christiane De Boeck
Specialist
PI on 1 active trial1 Digestive tract malformation publication
AM
Alexander Möller, MD
Specialist
PI on 1 active trial1 Digestive tract malformation publication
HM
Harm Tiddens, MD
Specialist
PI on 1 active trial
TM
Tacjana Pressler, PhD MD
Specialist
PI on 1 active trial
JD
Jeremy Hull, Dr
Specialist
PI on 1 active trial
LM
Larry Lands, MD
Specialist
PI on 1 active trial1 Digestive tract malformation publication
JD
Joachim Riethmuller, Dr
Specialist
PI on 1 active trial
VM
Virginia Stallings, MD
PHILADELPHIA, PA
Specialist
PI on 1 active trial
FP
Felix Ratjen, MD PhD
Specialist
PI on 2 active trials
WM
William G Flight, MBChB
Specialist
PI on 1 active trial
CM
Charlie Strange, MD
WIGGINS, MS
Specialist
PI on 2 active trials
GM
Galip Can Uyar, MD
Specialist
PI on 3 active trials1 Digestive tract malformation publication
MP
Malcolm Kohler, MD, Prof
Specialist
PI on 3 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Digestive tract malformation.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Digestive tract malformationForum →

No community posts yet. Be the first to share your experience with Digestive tract malformation.

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Latest news about Digestive tract malformation

Disease timeline:

New recruiting trial: BioAmicus Complete for Functional Gastrointestinal Symptoms in Infants Aged 0 to 24 Months

A new clinical trial is recruiting patients for Digestive tract malformation

New recruiting trial: Preventive Effect of Prophylactic Oral Antibiotics Against Cholangitis After Kasai Portoenterostomy

A new clinical trial is recruiting patients for Digestive tract malformation

New recruiting trial: Cognitive-behavioral Therapy for the Diseases Associated With Esophageal-brain-gut Axis Communication Abnormalities.

A new clinical trial is recruiting patients for Digestive tract malformation

New recruiting trial: Amniotic Fluid & the Preterm Gut

A new clinical trial is recruiting patients for Digestive tract malformation

New recruiting trial: Evaluation of the Use of Granulocyte Colony Stimulating Factor (GCSF) in Post Kasai Type 3 Biliary Atresia

A new clinical trial is recruiting patients for Digestive tract malformation

New recruiting trial: Impact of B. Adolescentis iVS-1 Probiotic on Gastrointestinal Outcomes

A new clinical trial is recruiting patients for Digestive tract malformation

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Digestive tract malformation

Which specialists treat Digestive tract malformation?

25 specialists and care centers treating Digestive tract malformation are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.