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2 articles from the last 30 days matching "european reference network"

Clinical trialCLINICALTRIALSApr 3

Trial Now Recruiting: The Head and Neck Registry of the European Reference Network on Rare Adult Solid Cancers (NCT05483374)

Doctors across Europe are building a database to track rare head and neck cancers like nasopharynx cancer and salivary gland cancer. They're recruiting 13,600 patients to help them understand how these cancers develop and improve treatment. This registry will help researchers learn more about these uncommon cancers so doctors can treat patients better in the future.

WHY IT MATTERSIf you have a rare head and neck cancer like nasopharynx or salivary gland cancer, joining this registry helps European specialists understand your condition better and could improve treatment options for patients like you.
💬 Ask your doctorNasopharynx cancerNasal cavity and paranasal sinus cancerSalivary gland cancerRead →
PolicyPUBMEDApr 1

Patient partnership model in rare and complex rheumatological conditions: research and beyond in European Reference Network ReCONNET.

A European network for rare connective tissue diseases has created a new model where patients are treated as equal partners in research and care decisions. Instead of doctors alone deciding what to study and how to treat patients, this network includes patients in every step—from identifying problems to writing research papers together. This approach helps address long diagnostic delays and gaps in care that patients with these rare diseases often face.

WHY IT MATTERSPatients with rare connective tissue diseases can now directly influence research priorities and treatment approaches through structured partnership roles, rather than having decisions made without their input.
💬 Ask your doctorrare connective tissue diseasessystemic sclerosissystemic lupus erythematosusRead →

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