Urogenital tract malformation

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ORPHA:83001
Who is this for?
Show terms as
1Active trials33Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

8 events
Oct 2025Long-term Follow-up of the Offspring Born to Mothers With a Solid Organ Transplant, Transplantlines Next Generation

University Medical Center Groningen

TrialRECRUITING
Oct 2025IL-6 and Lactates in Cord Blood and Neonatal Outcomes

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

TrialNOT YET RECRUITING
Oct 2024Surgical and Obstetric Outcomes in Patients With Uterine Malformations Undergoing Hysteroscopic Corrective Treatment

Fondazione Policlinico Universitario Agostino Gemelli IRCCS

TrialRECRUITING
Aug 2024Quality of Information Provided During Antenatal Consultations

Hospices Civils de Lyon

TrialRECRUITING
Aug 2024Screen-and-treat Strategy for Vaginal Flora Abnormalities in Pregnant Women at High Risk of Preterm Birth

Assistance Publique Hopitaux De Marseille — PHASE4

TrialNOT YET RECRUITING
Dec 2023Snodgrass Versus Grafted Snodgrass Repair in Narrow Urethral Plate in Distal Penile Hypospadias

Sohag University — NA

TrialRECRUITING
Jan 2023Is Dorsal Inlay Graft (DIG) With TIP Repair Superior to TIP Alone for Primary Hypospadias?

Mohammad Daboos — NA

TrialRECRUITING
Jul 2020Cycled Phototherapy

NICHD Neonatal Research Network — NA

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Urogenital tract malformation.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →
Other1 trial
Surgical and Obstetric Outcomes in Patients With Uterine Malformations Undergoing Hysteroscopic Corrective Treatment
Actively Recruiting
PI: Ursula Catena (Fondazione Policlinico Universitario A. Gemelli, I) · Sites: Rome, RM · Age: 18–99 yrs
View on ClinicalTrials.gov ↗I'm interested →

Specialists

Showing 25 of 33View all specialists →
JM
John P Gearhart, MD
BALTIMORE, MD
Specialist
PI on 2 active trials
LM
Lina Chalak, MD
LITTLE ROCK, AR
Specialist
PI on 3 active trials1 Urogenital tract malformation publication
KM
Kathleen A. Kennedy, MD MPH
Specialist
PI on 2 active trials
LP
Laurence Heidet, PHD
Specialist
PI on 1 active trial
SM
Seetha Shankaran, MD
DETROIT, MI
Specialist
PI on 8 active trials
MM
Manuel Häckl, MD
Specialist
PI on 5 active trials
SM
Sezin Unal, MD
Specialist
PI on 2 active trials
AM
Abbot R. Laptook, MD
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 11 active trials1 Urogenital tract malformation publication
BM
Barbara J. Stoll, MD
ELKO, NV
Specialist
PI on 4 active trials
AP
Abhik Das, PhD
Specialist
PI on 5 active trials
EM
Erica Daina, MD
Specialist
PI on 2 active trials
PM
Patricia Bretones, MD
Specialist
PI on 1 active trial
JM
Jose Rauh-Hain, MD,MPH
HOUSTON, TX
Specialist
PI on 1 active trial
RM
Rekha Garg, MD
Specialist
PI on 2 active trials
NP
Navid Khodaparast, PhD
Specialist
PI on 3 active trials
MP
Melanie McWade, PhD
Specialist
PI on 1 active trial
LM
Lewis B Holmes, M.D.
Specialist
PI on 1 active trial
MM
Morey W Haymond, MD
HOUSTON, TX
Specialist
PI on 1 active trial
JM
Julie Wright, MD
Specialist
PI on 1 active trial
SM
Shanlee M Davis, MD
AURORA, CO
Specialist
PI on 3 active trials
MM
Menachem Miodovnik
Specialist
PI on 1 active trial20 Urogenital tract malformation publications
KP
Kevin Kain, PhD
NEWARK, DE
Specialist
PI on 1 active trial
DM
Dwight Rouse, MD
PROVIDENCE, RI
Specialist
PI on 1 active trial
JM
Jane E Hitti, MD, MPH
EVERETT, WA
Specialist
PI on 1 active trial
RF
Rosalind A Eeles, FRCP FRCR
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Urogenital tract malformation.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Urogenital tract malformation

Disease timeline:

New recruiting trial: Snodgrass Versus Grafted Snodgrass Repair in Narrow Urethral Plate in Distal Penile Hypospadias

A new clinical trial is recruiting patients for Urogenital tract malformation

New recruiting trial: Is Dorsal Inlay Graft (DIG) With TIP Repair Superior to TIP Alone for Primary Hypospadias?

A new clinical trial is recruiting patients for Urogenital tract malformation

New recruiting trial: USCOM in Newly Diagnosed FGR Cases

A new clinical trial is recruiting patients for Urogenital tract malformation

New recruiting trial: Surgical and Obstetric Outcomes in Patients With Uterine Malformations Undergoing Hysteroscopic Corrective Treatment

A new clinical trial is recruiting patients for Urogenital tract malformation

New recruiting trial: Fetal Brain Care: Therapies for Brain Neurodevelopment in Fetal Growth Restriction

A new clinical trial is recruiting patients for Urogenital tract malformation

New recruiting trial: Long-term Follow-up of the Offspring Born to Mothers With a Solid Organ Transplant, Transplantlines Next Generation

A new clinical trial is recruiting patients for Urogenital tract malformation

New recruiting trial: Quality of Information Provided During Antenatal Consultations

A new clinical trial is recruiting patients for Urogenital tract malformation

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Urogenital tract malformation

Are there clinical trials for Urogenital tract malformation?

Yes — 1 recruiting clinical trial is currently listed for Urogenital tract malformation on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Urogenital tract malformation?

25 specialists and care centers treating Urogenital tract malformation are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.