Undifferentiated connective tissue syndrome

Last reviewed

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ORPHA:90002M35.8
Who is this for?
Show terms as
16Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms:

Anti-dsDNA antibody positivityHP:0020151Anti-ribosome Po antibody positivityHP:0034076Anti-Ro52/TRIM21 antibody positivityHP:0034093
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Undifferentiated connective tissue syndrome.

View clinical trials →

No actively recruiting trials found for Undifferentiated connective tissue syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Undifferentiated connective tissue syndrome community →

Specialists

16 foundView all specialists →
MM
Mary Mackenzie, MD
Specialist
PI on 1 active trial
CS
Candace H Feldman, MD, MPH, ScD
BOSTON, MA
Specialist
PI on 1 active trial
MF
Maryam Fouladi
COLUMBUS, OH
Specialist
PI on 7 active trials2 Undifferentiated connective tissue syndrome publications
AS
Ann (Annie) W Silk
Los Angeles, California
Specialist

Rare Disease Specialist

PI on 1 active trial
MM
Monique Hinchcliff, MD
NORTH HAVEN, CT
Specialist
PI on 2 active trials
RR
Ramesh Ramanathan
PITTSBURGH, PA
Specialist
PI on 3 active trials7 Undifferentiated connective tissue syndrome publications
RP
Robert Z. Orlowski, MD, PhD
HOUSTON, TX
Specialist
PI on 1 active trial
NL
Noelle LoConte
MADISON, WI
Specialist
PI on 1 active trial
LP
Laetitia Michou, MD PhD
Québec, Quebec
Specialist

Rare Disease Specialist

PI on 2 active trials
EM
Elizabeth C. Dees, MD
CHAPEL HILL, NC
Specialist
PI on 1 active trial
RM
Raphaela T Goldbach-Mansky, M.D.
BETHESDA, MD
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Undifferentiated connective tissue syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Undifferentiated connective tissue syndrome

Disease timeline:

New recruiting trial: Impact of Capillaroscopy on the Management of Undifferentiated Connective Tissue Disease

A new clinical trial is recruiting patients for Undifferentiated connective tissue syndrome

New recruiting trial: Undifferentiated Connective Tissue Disease Registry

A new clinical trial is recruiting patients for Undifferentiated connective tissue syndrome

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Undifferentiated connective tissue syndrome

Which specialists treat Undifferentiated connective tissue syndrome?

16 specialists and care centers treating Undifferentiated connective tissue syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.