Splenic marginal zone lymphoma

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ORPHA:86854C83.0
Who is this for?
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1FDA treatments1Active trials13Specialists8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

3 events
Feb 2021

Ukoniq: FDA approved

treatment of adult patients with relapsed or refractory marginal zone lymphoma (MZL) who have received at least one prior anti-CD20-based regimen (Indication withdrawn)

FDAcompleted
Jan 2017

IMBRUVICA: FDA approved

Treatment of patients with Marginal Zone Lymphoma (MZL) who require systemic therapy and have received at least one prior anti-CD20-based therapy (indication withdrawn)

FDAcompleted
May 2008Natural History Study of Monoclonal B Cell Lymphocytosis (MBL), Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma (CLL/SLL), Lymphoplasmacytic Lymphoma (LPL)/Waldenstrom Macroglobulinemia (WM), and Splenic Marginal Zone Lymphoma (SMZL)

National Heart, Lung, and Blood Institute (NHLBI)

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

IMBRUVICA

ibrutinib· Pharmacyclics, LLCOrphan Drug

Treatment of patients with Marginal Zone Lymphoma (MZL) who require systemic therapy and have received at least one prior anti-CD20-based therapy (indication withdrawn)

Clinical Trials

1 recruitingView all trials with filters →
Other1 trial
Natural History Study of Monoclonal B Cell Lymphocytosis (MBL), Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma (CLL/SLL), Lymphoplasmacytic Lymphoma (LPL)/Waldenstrom Macroglobulinemia (WM), and Splenic Marginal Zone Lymphoma (SMZL)
Actively Recruiting
PI: Adrian U Wiestner, M.D. (National Heart, Lung, and Blood Institute (NHLBI)) · Sites: Bethesda, Maryland · Age: 18110 yrs

Specialists

13 foundView all specialists →
VP
Véronique LEBLOND, Professor
Specialist
PI on 1 active trial
PM
Paolo Caimi, MD
CLEVELAND, OH
Specialist
PI on 5 active trials
TM
Thomas G. Martin, MD
Specialist
PI on 4 active trials
PM
Paul Martin
Specialist
PI on 3 active trials73 Splenic marginal zone lymphoma publications
KM
Kami Maddocks, MD
COLUMBUS, OH
Specialist
PI on 5 active trials
SK
Shaji Kumar
Anchorage, Alaska
Specialist

Rare Disease Specialist

PI on 7 active trials
JP
James L. Rubenstein, MD, PhD
Specialist
PI on 2 active trials
OP
Oliver W. Press, MD, PhD
SAN LUIS OBISPO, CA
Specialist
PI on 4 active trials
AW
Ann Woolfrey
SEATTLE, WA
Specialist
PI on 5 active trials
MM
Minoti Hiremath, MD
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources

Ukoniq

TG Therapeutics, Inc.

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copay card
copay assistancePatient Assistance
Accepting applications

Travel Grants

No travel grants are currently matched to Splenic marginal zone lymphoma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Splenic marginal zone lymphoma

Disease timeline:

New recruiting trial: Natural History Study of Monoclonal B Cell Lymphocytosis (MBL), Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma (CLL/SLL), Lymphoplasmacytic Lymphoma (LPL)/Waldenstrom Macroglobulinemia (WM), and Splenic Marginal Zone Lymphoma (SMZL)

A new clinical trial is recruiting patients for Splenic marginal zone lymphoma

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Splenic marginal zone lymphoma

Are there clinical trials for Splenic marginal zone lymphoma?

Yes — 1 recruiting clinical trial is currently listed for Splenic marginal zone lymphoma on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Splenic marginal zone lymphoma?

13 specialists and care centers treating Splenic marginal zone lymphoma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Splenic marginal zone lymphoma?

1 patient support program are currently tracked on UniteRare for Splenic marginal zone lymphoma. See the treatments and support programs sections for copay assistance, eligibility, and contact details.