Respiratory or thoracic malformation

Last reviewed

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ORPHA:97957
Who is this for?
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10Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Respiratory or thoracic malformation.

View clinical trials →

No actively recruiting trials found for Respiratory or thoracic malformation at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Respiratory or thoracic malformation community →

Specialists

10 foundView all specialists →
KW
Katarzyna Warzeszak
Specialist
PI on 1 active trial29 Respiratory or thoracic malformation publications
AP
Agostino Pierro, Prof
Specialist
PI on 1 active trial
SP
Sarina A Piha-Paul
Houston, Texas
Specialist

Rare Disease Specialist

PI on 2 active trials2 Respiratory or thoracic malformation publications
LM
Lee M. Krug, MD
NEW YORK, NY
Specialist
PI on 2 active trials1 Respiratory or thoracic malformation publication
PH
Professor ME Hodson
Specialist
PI on 1 active trial
AM
Anita Scheuber, MD
Specialist
PI on 1 active trial1 Respiratory or thoracic malformation publication
RP
Robert Atkinson, Ph.D.
Specialist
PI on 1 active trial
LM
Luisa Veronese, MD
Specialist
PI on 1 active trial1 Respiratory or thoracic malformation publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Respiratory or thoracic malformation.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Respiratory or thoracic malformationForum →

No community posts yet. Be the first to share your experience with Respiratory or thoracic malformation.

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Latest news about Respiratory or thoracic malformation

No recent news articles for Respiratory or thoracic malformation.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Respiratory or thoracic malformation

Which specialists treat Respiratory or thoracic malformation?

10 specialists and care centers treating Respiratory or thoracic malformation are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.