Rare urinary tract tumor

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:98058
Who is this for?
Show terms as
2FDA treatments14Specialists8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

2 available

IMFINZI

durvalumab· AstraZeneca Pharmaceuticals LP

in combination with gemcitabine and cisplatin, as treatment of adult patients with locally advanced or metastatic biliary tract cancer (BTC)

Ziihera

zanidatamab-hrii· Jazz Pharmaceuticals Ireland Limited■ Boxed WarningOrphan Drug

treatment of adults with previously treated, unresectable or metastatic HER2-positive (IHC 3+) biliary tract cancer (BTC), as detected by an FDA-approved test

No actively recruiting trials found for Rare urinary tract tumor at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare urinary tract tumor community →

Specialists

14 foundView all specialists →
AA
Andrea B Apolo
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 4 active trials
SA
Srivandana Akshintala
WASHINGTON, DC
Specialist
PI on 1 active trial
CD
Camila MV Moniz, Doctor
SAN ANTONIO, TX
Specialist
PI on 1 active trial
AM
Aurélien Marabelle, MD
Specialist
PI on 2 active trials
LM
Lindsay Talbot, MD
MEMPHIS, TN
Specialist
PI on 1 active trial
MM
Michael Heinrich, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources
IMFINZI(durvalumab)AstraZeneca Pharmaceuticals LP

Travel Grants

No travel grants are currently matched to Rare urinary tract tumor.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Rare urinary tract tumorForum →

No community posts yet. Be the first to share your experience with Rare urinary tract tumor.

Start the conversation →

Latest news about Rare urinary tract tumor

No recent news articles for Rare urinary tract tumor.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare urinary tract tumor

Which specialists treat Rare urinary tract tumor?

14 specialists and care centers treating Rare urinary tract tumor are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.