Rare renal tumor

Last reviewed March 21, 2026

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ORPHA:93619

Who is this for?

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13Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Rare renal tumor.

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Clinical Trials

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No actively recruiting trials found for Rare renal tumor at this time.

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Specialists

13 foundView all specialists →

MD

Matthew Krebs, Dr

Specialist

ALK-positive anaplastic large cell lymphoma Anaplastic thyroid carcinoma Bronchial neuroendocrine tumor+56 more

PI on 7 active trials

Active trials Directions Travel grants

AA

Andrea B Apolo

Birmingham, Alabama

Specialist

Rare Disease Specialist

Adenocarcinoma of the penis Chromophobe renal cell carcinoma Clear cell papillary renal cell carcinoma+18 more

PI on 4 active trials

Active trials Directions Travel grants

AM

Andrea B Apolo, M.D.

BETHESDA, MD

Specialist

Acquired cystic disease-associated renal cell carcinoma Adenocarcinoma of the penis Bronchial neuroendocrine tumor+9 more

PI on 9 active trials

Active trials Directions Travel grants

HD

Hongxia Wang, Doctor

Specialist

Adenocarcinoma of the penis Clear cell sarcoma of kidney Extramammary Paget disease+11 more

PI on 2 active trials

Active trials Directions Travel grants

AN

Aung Naing

Specialist

Adenocarcinoma of the penis Adenoma of pancreas Fibrolamellar hepatocellular carcinoma+8 more

PI on 2 active trials

Active trials Directions Travel grants

SA

Srivandana Akshintala

WASHINGTON, DC

Specialist

Adrenocortical carcinoma Alveolar rhabdomyosarcoma Alveolar soft tissue sarcoma+34 more

PI on 1 active trial

Active trials Directions Travel grants

CD

Camila MV Moniz, Doctor

SAN ANTONIO, TX

Specialist

Adenocarcinoma of the penis Chromophobe renal cell carcinoma Clear cell sarcoma of kidney+35 more

PI on 1 active trial

Active trials Directions Travel grants

JL

Jarrod Longcor

Specialist

B-cell chronic lymphocytic leukemia Desmoplastic small round cell tumor Embryonal tumor of neuroepithelial tissue+13 more

PI on 3 active trials

Active trials Directions Travel grants

AM

Aurélien Marabelle, MD

Specialist

Neuroblastoma Rare head and neck tumor Rare renal disease+2 more

PI on 2 active trials

Active trials Directions Travel grants

LM

Lindsay Talbot, MD

MEMPHIS, TN

Specialist

Rare bone tumor Rare digestive tumor Rare hepatic disease+2 more

PI on 1 active trial

Active trials Directions Travel grants

JM

John E. Levine, MS MD

Specialist

Genetic head and neck malformation Malignant vascular tumor Post-transplant lymphoproliferative disease+7 more

PI on 3 active trials

Active trials Directions Travel grants

PO

Piet Ost

Specialist

Rare carcinoma of pancreas Rare carcinoma of small intestine Rare carcinoma of stomach+7 more

PI on 1 active trial

Active trials Directions Travel grants

MG

Matthias Guckenberger

Specialist

Rare carcinoma of pancreas Rare carcinoma of small intestine Rare carcinoma of stomach+7 more

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Rare renal tumor.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Rare renal tumor

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare renal tumor

Which specialists treat Rare renal tumor?

13 specialists and care centers treating Rare renal tumor are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.