Panuveitis

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ORPHA:280898
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19Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Panuveitis is a serious eye condition in which all layers of the uvea become inflamed. The uvea is the middle layer of the eye and includes the iris (the colored part), the ciliary body (which helps the eye focus), and the choroid (a layer of blood vessels that nourishes the retina). When all three parts are inflamed at the same time, it is called panuveitis. This condition can also affect nearby structures like the retina and the vitreous (the gel-like substance inside the eye). Symptoms of panuveitis often include blurred vision, eye pain, redness, sensitivity to light, and seeing floaters (small spots or lines drifting across your vision). If left untreated, panuveitis can lead to serious complications such as cataracts, glaucoma, retinal damage, and even permanent vision loss. The condition can affect one or both eyes. Panuveitis can be caused by infections (such as tuberculosis, syphilis, or toxoplasmosis), autoimmune diseases (such as sarcoidosis, Behçet disease, or Vogt-Koyanagi-Harada disease), or it may have no identifiable cause (idiopathic). Treatment typically involves controlling the inflammation with corticosteroids, either as eye drops, injections around the eye, or taken by mouth. In more severe or chronic cases, immunosuppressive medications may be needed. Biologic therapies such as adalimumab (Humira) have been FDA-approved for certain forms of non-infectious uveitis. Early diagnosis and treatment are essential to preserve vision.

Also known as:

Key symptoms:

Blurred or decreased visionEye painEye rednessSensitivity to light (photophobia)Floaters (spots or lines in your vision)Tearing or watery eyesHeadachesDark spots in your field of visionDifficulty seeing at nightSwelling around the eyeGradual vision lossSeeing halos around lightsChanges in pupil size or shape

Inheritance

Multifactorial

Caused by a mix of several genes and environmental factors

Age of Onset

Variable

Can begin at different ages, from infancy through adulthood

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Panuveitis.

View clinical trials →

No actively recruiting trials found for Panuveitis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Panuveitis community →

Specialists

19 foundView all specialists →
SP
Shigeaki Ohno, PhD
Specialist
PI on 1 active trial
TM
Thomas Ciulla, MD
CARMEL, IN
Specialist
PI on 8 active trials
TM
Thomas Cuilla, MD, MBA
Specialist
PI on 1 active trial
AP
Andy Payne
Specialist
PI on 1 active trial17 Panuveitis publications
HM
Hatice N Sen, M.D.
RIVERSIDE, CA
Specialist
PI on 8 active trials
SC
Soon P Chee
Specialist
PI on 1 active trial7 Panuveitis publications
FM
Fereydoun Davatchi, MD
Specialist
PI on 4 active trials
FM
Farhad Shahram, MD
Specialist
PI on 1 active trial
TM
Toshifumi Hibi, MD
Specialist
PI on 1 active trial
SM
Shunsei Hirohata, MD
Specialist
PI on 1 active trial
YP
Yoshiaki Ishigatsubo, MD, Ph.D
Specialist
PI on 1 active trial
KM
Kazuoki Kondo, MD
Specialist
PI on 2 active trials
BM
Bahar Sadeghi, MD
Specialist
PI on 1 active trial
MM
Maryam Noroozian, MD
Specialist
PI on 1 active trial
NP
NOEL NN Nicolas, MD PhD
PHOENIX, AZ
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Panuveitis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Panuveitis

No recent news articles for Panuveitis.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What is the likely cause of my panuveitis, and do I need additional testing to find out?,How severe is the inflammation, and has it caused any damage to my retina or other eye structures?,What treatment plan do you recommend, and what are the potential side effects?,How often will I need follow-up eye exams?,Am I at risk for vision loss, and what can I do to protect my eyesight?,Should I see other specialists for possible underlying conditions?,Are there any lifestyle changes or precautions I should take while on treatment?

Common questions about Panuveitis

What is Panuveitis?

Panuveitis is a serious eye condition in which all layers of the uvea become inflamed. The uvea is the middle layer of the eye and includes the iris (the colored part), the ciliary body (which helps the eye focus), and the choroid (a layer of blood vessels that nourishes the retina). When all three parts are inflamed at the same time, it is called panuveitis. This condition can also affect nearby structures like the retina and the vitreous (the gel-like substance inside the eye). Symptoms of panuveitis often include blurred vision, eye pain, redness, sensitivity to light, and seeing floaters

How is Panuveitis inherited?

Panuveitis follows a multifactorial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

Which specialists treat Panuveitis?

19 specialists and care centers treating Panuveitis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.