Monoclonal mast cell activation syndrome

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ORPHA:529468C94.3
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4Specialists8Treatment centers

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UniteRare data is compiled from authoritative primary sources (FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, NORD), then processed through automated and AI-assisted extraction pipelines.
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What is Monoclonal mast cell activation syndrome?

Also known as:

Orphanet ↗NORD ↗

Treatments

Source: openFDA + DailyMed · NDA / BLA labels with structured indications · refreshed weekly

No FDA-approved treatments are currently listed for Monoclonal mast cell activation syndrome.

View clinical trials →

Source: ClinicalTrials.gov · synced daily · phases, status, and PI names normalized at ingest

No actively recruiting trials found for Monoclonal mast cell activation syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Monoclonal mast cell activation syndrome community →

Specialists

4 foundView all specialists →

Source: NPI Registry + PubMed · trial PI roles cross-referenced with ClinicalTrials.gov · ranked by match score (publications + PI activity + community signal)

JM
Jeffrey J. Raizer, MD
CHICAGO, IL
Specialist
PI on 7 active trials
SP
Suzanne C. Danhauer, PhD
WINSTON SALEM, NC
Specialist
PI on 5 active trials
TM
Tom R. Fitch, M.D.
GLENDALE, AZ
Specialist
PI on 1 active trial

Treatment Centers

8 centers

Source: NORD Rare Disease Centers + NIH Undiagnosed Diseases Network (UDN) · centers verified active within last 12 months

🏨 Children's

Children's Hospital Colorado Rare Disease Program

Children's Hospital Colorado

📍 Aurora, CO

👤 Boston Children's Hospital Rare Disease Program

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Boston Children's Hospital Rare Disease Program

Boston Children's Hospital

📍 Boston, MA

👤 Boston Children's Hospital Rare Disease Program

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

🏨 Children's

Ann & Robert H. Lurie Children's Hospital Genetics

Lurie Children's Hospital

📍 Chicago, IL

👤 Boston Children's Hospital Rare Disease Program

🏥 NORD

Cincinnati Children's Hospital Medical Center

Cincinnati Children's

📍 Cincinnati, OH

👤 Boston Children's Hospital Rare Disease Program

🏨 Children's

Nationwide Children's Hospital Rare Disease Center

Nationwide Children's Hospital

📍 Columbus, OH

👤 Boston Children's Hospital Rare Disease Program

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

Travel Grants

No travel grants are currently matched to Monoclonal mast cell activation syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Monoclonal mast cell activation syndrome

Source: PubMed + NIH RePORTER + openFDA + clinical-journal RSS · last 30 days · disease-tagged at ingest by AI extraction with human QC

No recent news articles for Monoclonal mast cell activation syndrome.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

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Family & Caregiver Grants

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Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Monoclonal mast cell activation syndrome

Which specialists treat Monoclonal mast cell activation syndrome?

4 specialists and care centers treating Monoclonal mast cell activation syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

Frequently asked questions about Monoclonal mast cell activation syndrome

Auto-generated from canonical disease facts (Orphanet, OMIM, ClinicalTrials.gov, openFDA, NPPES). Not a substitute for clinical guidance.

  1. What is Monoclonal mast cell activation syndrome?

    Monoclonal mast cell activation syndrome is a rare disease catalogued in international rare-disease ontologies (Orphanet ORPHA:529468). Inheritance pattern depends on the specific subtype. For verified primary sources, see the UniteRare Monoclonal mast cell activation syndrome page.

  2. Are there FDA-approved treatments for Monoclonal mast cell activation syndrome?

    Approved treatments for Monoclonal mast cell activation syndrome are tracked from openFDA and DailyMed primary sources. Many rare diseases have no specific FDA-approved therapy; for those, supportive care and management of complications form the basis of clinical care. Orphan-drug-designation status is noted where applicable.

  3. Are there clinical trials for Monoclonal mast cell activation syndrome?

    Active clinical trials for Monoclonal mast cell activation syndrome are tracked daily from ClinicalTrials.gov. Trial availability changes frequently; check the UniteRare trial listings for the current count and recruitment status. Sponsors of rare-disease research often welcome inquiries even when a trial is not actively recruiting at a given moment.

  4. How do I find a specialist for Monoclonal mast cell activation syndrome?

    UniteRare lists 4 verified clinicians with documented expertise in Monoclonal mast cell activation syndrome, sourced from ClinicalTrials.gov principal-investigator records, PubMed publication histories, and the NPPES NPI registry. Filter by state or browse our state-specific specialist pages for nearby options.

See full Monoclonal mast cell activation syndrome page for complete clinical details, sources, and verified-specialist listings.

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