Diffuse palmoplantar keratoderma

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5Specialists8Treatment centers

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Overview

Diffuse palmoplantar keratoderma (also called diffuse PPK) is a skin condition in which the skin on the palms of the hands and the soles of the feet becomes abnormally thick, hard, and sometimes yellowish. The word "diffuse" means the thickening covers most or all of the palm and sole surfaces evenly, rather than appearing in patches or spots. This thickening happens because the outer layer of skin (the epidermis) produces too much of a tough protein called keratin. The condition usually begins in early childhood, often within the first few years of life. The thickened skin can crack and become painful, making it difficult to walk comfortably or use the hands for fine tasks. Some people also develop excessive sweating (hyperhidrosis) on the affected areas, which can lead to an unpleasant odor or increase the risk of fungal or bacterial infections. In some forms, the thickened skin may extend slightly beyond the palms and soles onto the tops of the hands, feet, or wrists — this is called a "transgrediens" pattern. Diffuse palmoplantar keratoderma can be inherited (genetic) or, less commonly, acquired later in life. The inherited forms are caused by mutations in genes that are important for skin structure and barrier function. Treatment is mainly focused on managing symptoms, as there is currently no cure. Regular use of moisturizers, keratolytic creams (which help soften and remove thickened skin), and careful foot care are the mainstays of management. In more severe cases, oral retinoids may be prescribed to help reduce skin thickening.

Also known as:

Key symptoms:

Thick, hard skin on the palms of the handsThick, hard skin on the soles of the feetYellowish discoloration of palms and solesPainful cracking or fissuring of thickened skinDifficulty walking due to painful solesExcessive sweating on hands and feetUnpleasant odor from affected skinSkin infections in the thickened areasRedness around the edges of the thickened skinDifficulty gripping objects or performing fine hand tasksCallus-like appearance of palms and solesPossible thickening extending to the backs of hands or feet

Inheritance

Variable

Can be inherited in different ways depending on the underlying gene

Age of Onset

Childhood

Begins in childhood, roughly ages 1 to 12

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Diffuse palmoplantar keratoderma.

View clinical trials →

No actively recruiting trials found for Diffuse palmoplantar keratoderma at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Diffuse palmoplantar keratoderma community →

Specialists

5 foundView all specialists →
JP
Johanna H Hagman, M.D, PhD
Specialist
PI on 1 active trial
SP
Simon W Young, DDS, MD, PhD
Specialist
PI on 1 active trial
RM
Ronnie Aronson, MD
STAMFORD, CT
Specialist
PI on 2 active trials
KM
Konika P Schallen, MD
JACKSONVILLE, FL
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Diffuse palmoplantar keratoderma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Diffuse palmoplantar keratoderma

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Caregiver Resources

NORD Caregiver Resources

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Social Security Disability

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Questions for your doctor

Bring these to your next appointment

  • Q1.What specific type of palmoplantar keratoderma do I or my child have, and is genetic testing recommended?,What is the best daily skin care routine to manage the thickened skin?,Are oral retinoids appropriate in my case, and what are the risks and benefits?,Should I see a podiatrist regularly for foot care?,Is this condition likely to be passed on to my children, and should we consider genetic counseling?,Are there any clinical trials or new treatments being studied for this condition?,What should I do if the skin becomes infected or the cracks get worse?

Common questions about Diffuse palmoplantar keratoderma

What is Diffuse palmoplantar keratoderma?

Diffuse palmoplantar keratoderma (also called diffuse PPK) is a skin condition in which the skin on the palms of the hands and the soles of the feet becomes abnormally thick, hard, and sometimes yellowish. The word "diffuse" means the thickening covers most or all of the palm and sole surfaces evenly, rather than appearing in patches or spots. This thickening happens because the outer layer of skin (the epidermis) produces too much of a tough protein called keratin. The condition usually begins in early childhood, often within the first few years of life. The thickened skin can crack and beco

At what age does Diffuse palmoplantar keratoderma typically begin?

Typical onset of Diffuse palmoplantar keratoderma is childhood. Age of onset can vary across affected individuals.

Which specialists treat Diffuse palmoplantar keratoderma?

5 specialists and care centers treating Diffuse palmoplantar keratoderma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.