Overview
Also known as:
Clinical phenotype terms— hover any for plain English:
FDA & Trial Timeline
1 eventMassachusetts General Hospital — PHASE2
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
No FDA-approved treatments are currently listed for Bohring-Opitz syndrome.
View clinical trials →Clinical Trials
View all trials with filters →No actively recruiting trials found for Bohring-Opitz syndrome at this time.
New trials open frequently. Follow this disease to get notified.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Bohring-Opitz syndrome.
Community
No community posts yet. Be the first to share your experience with Bohring-Opitz syndrome.
Start the conversation →Latest news about Bohring-Opitz syndrome
Disease timeline:
New recruiting trial: Study to Evaluate ARINA-1 in the Prevention of Bronchiolitis Obliterans Progression in Participants With Bilateral Lung Transplant
A new clinical trial is recruiting patients for Bohring-Opitz syndrome
New recruiting trial: LAM-001 in Lung Transplant Recipients With Bronchiolitis Obliterans Syndrome.
A new clinical trial is recruiting patients for Bohring-Opitz syndrome
New recruiting trial: Nintedanib in Patients With Bronchiolitis Obliterans Syndrome Following Hematopoietic Stem Cell Transplantation
A new clinical trial is recruiting patients for Bohring-Opitz syndrome
New recruiting trial: The Longitudinal Impact of Respiratory Viruses on Bronchiolitis Obliterans Syndrome After Allogeneic Hematopoietic Cell Transplantation (The RV-BOS Study)
A new clinical trial is recruiting patients for Bohring-Opitz syndrome
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Bohring-Opitz syndrome
Which specialists treat Bohring-Opitz syndrome?
22 specialists and care centers treating Bohring-Opitz syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.