Shashi-Pena syndrome

Last reviewed

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ORPHA:689408OMIM:617190Q87.8
Who is this for?
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4Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Shashi-Pena syndrome.

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No actively recruiting trials found for Shashi-Pena syndrome at this time.

New trials open frequently. Follow this disease to get notified.

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Specialists

4 foundView all specialists →
WB
Wen-Hann Tan, BMBS
Specialist
PI on 6 active trials
LP
Loren Pena, MD, PhD
Specialist
PI on 1 active trial
VP
Vandana Shashi, MD, PhD
DURHAM, NC
Specialist
PI on 1 active trial
BM
Bianca Russell, MD
LOS ANGELES, CA
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Shashi-Pena syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Shashi-Pena syndrome

No recent news articles for Shashi-Pena syndrome.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Shashi-Pena syndrome

Which specialists treat Shashi-Pena syndrome?

4 specialists and care centers treating Shashi-Pena syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.