Overview
Adenosine Deaminase Deficiency is treated with 1 medication in our database, including Revcovi. Medications are manufactured by Leadiant. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Adenosine Deaminase Deficiency treatment below.
Autosomal recessive
Passed on when both parents carry the same gene change; often skips generations
Variable
Can begin at different ages, from infancy through adulthood
FDA & Trial Timeline
1 eventUniversity of California, Los Angeles
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
1 availableRevcovi
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Patients must be enrolled in Chiesi Total Care; have a valid pr
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Adenosine Deaminase Deficiency.
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Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Adenosine Deaminase Deficiency
What is Adenosine Deaminase Deficiency?
Adenosine Deaminase Deficiency is treated with 1 medication in our database, including Revcovi. Medications are manufactured by Leadiant. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Adenosine Deaminase Deficiency treatment below.
How is Adenosine Deaminase Deficiency inherited?
Adenosine Deaminase Deficiency follows a autosomal recessive inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
Are there clinical trials for Adenosine Deaminase Deficiency?
Yes — 1 recruiting clinical trial is currently listed for Adenosine Deaminase Deficiency on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Adenosine Deaminase Deficiency?
20 specialists and care centers treating Adenosine Deaminase Deficiency are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Adenosine Deaminase Deficiency?
1 FDA-approved treatment and 1 patient support program are currently tracked on UniteRare for Adenosine Deaminase Deficiency. See the treatments and support programs sections for copay assistance, eligibility, and contact details.