Swiss Registry for Neuromuscular Disorders

Key facts

Sponsor

University of Bern

Principal Investigator

Claudia E Kuehni, Prof. MD

Institute of Social and Preventive Medicine (ISPM), University of Bern

Enrollment

2000 enrolled

Eligibility

0 years · All sexes

Timeline

2018 – 2071

Study locations (19)

• Cantonal Hospital Aarau, Aarau, Canton of Aargau, Switzerland
• Pediatric Institute of Southern Switzerland, Ospedale San Giovanni, Bellinzona, Canton Ticino, Switzerland
• Neuro Centre of Italian Switzerland, Ospedale Regionale di Lugano, Lugano, Canton Ticino, Switzerland
• University Hospital Lausanne CHUV, Children's Hospital, Lausanne, Vaude, Switzerland
• University Hospital Lausanne CHUV, Lausanne, Vaude, Switzerland
• University Children's Hospital Basel, Basel, Switzerland
• University Hospital Basel, Basel, Switzerland
• Inselspital Bern, Children's Hospital, Bern, Switzerland
• Inselspital Bern, Bern, Switzerland
• Institute of Social and Preventive Medicine (ISPM), University of Bern, Bern, Switzerland
• University Hospitals of Geneva, Children's Hospital, Geneva, Switzerland
• University Hospitals of Geneva, Geneva, Switzerland
• Cantonal Hospital of Lucerne LUKS, Lucerne, Switzerland
• Cantonal Hospital of Lucerne, LUKS, Lucerne, Switzerland
• Private Practice Alpenquai, Lucerne, Switzerland
• +4 more locations on ClinicalTrials.gov

Collaborators

University Children's Hospital Basel · Insel Gruppe AG, University Hospital Bern · University of Lausanne Hospitals · Ente Ospedaliero Cantonale, Bellinzona · University Children's Hospital, Zurich · University Hospital, Zürich · SwissPedNet - Swiss Research Network of Clinical Pediatric Hubs

Primary source

Recruitment status, site addresses, contacts, and full eligibility criteria can change between syncs. Always verify with the trial team before planning travel or treatment.

Other trials for Autosomal dominant adult-onset proximal spinal muscular atrophy

Additional recruiting or active studies for the same condition.

• RECRUITINGNANCT07521930
  Interfacing With NeuroTechnology to Expand Neural Throughput (INTENT)
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• ACTIVE NOT RECRUITINGNANCT07547189
  Effects of Developmental Support for Mothers of Infants With Spinal Muscular Atrophy
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• RECRUITINGPHASE3NCT07444476
  A Study to Learn About Salanersen's (BIIB115) Effects on Movement and Its Safety in Participants Aged 15 to 60 Years With Spinal Muscular Atrophy (SMA) Who Are Either New to SMA Treatment or Were Previously Treated With Risdiplam
  Biogen
• RECRUITINGPHASE2NCT07047144
  A Study to Evaluate How Apitegromab Works in Subjects Who Are Less Than 2 Years Old and Have Spinal Muscular Atrophy
  Scholar Rock, Inc.
• RECRUITINGNCT07321990
  Study of the Reproducibility of the French Version of the Modified SMAFRS Scale
  Institut de Myologie, France
• ACTIVE NOT RECRUITINGNANCT06419322
  Acceptability, Feasibility, Safety and Efficacy of a Optimized Rehabilitation Program for Treated Patients With Spinal Muscular Atrophy (SMA).
  University of Oxford
• ACTIVE NOT RECRUITINGNANCT06300996
  Spinal Cord Stimulation for the Treatment of Motor Deficits in People With Spinal Muscular Atrophy - Upper Limb
  Marco Capogrosso
• RECRUITINGNANCT06322654
  A Head-to-head Study Comparing the Functional Value of Two Models of Robotically Assisted Rehabilitation in SMA (Spinal Muscular Atrophy) Patients
  Wiktor Dega University Orthopedic and Rehabilitation Hospital

See all trials for Autosomal dominant adult-onset proximal spinal muscular atrophy →