Natural History of Neuronal Ceroid Lipofuscinosis, Batten's CLN6 Diseae

Key facts

Sponsor

Emily de los Reyes

Principal Investigator

Emily de los Reyes, MD, MD

Abigail Wexner Research Institute, Nationwide Children's Hospital

Intervention

Natural history(other)

Enrollment

30 enrolled

Eligibility

2-25 years · All sexes

Timeline

2017 – 2026

Study locations (1)

• Nationwide Children's Hospital, Columbus, Ohio, United States

Primary source

Recruitment status, site addresses, contacts, and full eligibility criteria can change between syncs. Always verify with the trial team before planning travel or treatment.

Other trials for Batten Disease

Additional recruiting or active studies for the same condition.

• ACTIVE NOT RECRUITINGPHASE1, PHASE2NCT05228145
  Gene Therapy Study for Children With CLN5 Batten Disease
  Neurogene Inc.
• ACTIVE NOT RECRUITINGNCT04273243
  Long-Term Follow Up of CLN6 Batten Disease Subjects Following Gene Transfer
  Emily de los Reyes
• ENROLLING BY INVITATIONNCT03862274
  Examining Developmental Outcomes of Children Diagnosed With CLN2 Disease
  Jessica Scherr
• ACTIVE NOT RECRUITINGPHASE1, PHASE2NCT03770572
  Gene Therapy for Children With CLN3 Batten Disease
  Alcyone Therapeutics, Inc
• RECRUITINGNCT01873924
  Clinical and Neuropsychological Investigations in Batten Disease
  University of Rochester

See all trials for Batten Disease →