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2 articles from the last 30 days matching "nmosd"

NewsRSS3 days ago

My First Symptom of NMOSD

A patient shares their experience with neuromyelitis optica spectrum disorder (NMOSD), a rare disease that affects the nerves in the spinal cord and eyes. They describe how they initially ignored their first symptom until it became so severe that both they and their doctor couldn't overlook it anymore. This personal story highlights how NMOSD symptoms can start small but need prompt medical attention.

WHY IT MATTERSUnderstanding early warning signs of NMOSD is critical because delayed diagnosis can lead to permanent nerve damage, and patients who recognize symptoms sooner may have better outcomes with early treatment.
Good to knowneuromyelitis optica spectrum disorderRead →
Clinical trialUNITERAREApr 15

New Recruiting Trial: Observational Safety Study in Women With Neuromyelitis Optica Spectrum Disorder (NMOSD) Exposed to UPLIZNA® During Pregnancy

Researchers are looking for pregnant women with NMOSD (a rare disease that affects the nerves in the eyes and spinal cord) who have taken or are taking a medicine called UPLIZNA to join a safety study. The study will track what happens to these women and their babies to make sure the medicine is safe during pregnancy. This information will help doctors understand whether UPLIZNA can be used safely by pregnant patients with NMOSD.

WHY IT MATTERSThis trial is recruiting pregnant women with NMOSD who have been exposed to UPLIZNA — currently there is limited safety data on this drug during pregnancy, so this study directly addresses a critical gap for women of childbearing age managing this serious neurological condition.
You can act on thisNeuromyelitis Optica Spectrum Disorder (NMOSD)Read →

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