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31 articles from the last 7 days matching "aging"

AdvocacyRSS3 days ago

PNW (Oregon and Washington) MG Support Group

A support group for people with myasthenia gravis (MG), a rare condition where the immune system attacks muscles and causes weakness, is meeting in the Pacific Northwest region covering Oregon and Washington. Support groups bring together patients and caregivers to share experiences, learn from each other, and find emotional support. This group provides a local community resource for people managing this chronic condition.

WHY IT MATTERSLocal support groups help MG patients connect with others facing the same challenges, reduce isolation, and access peer-to-peer knowledge about managing symptoms and navigating treatment options in their region.
You can act on thismyasthenia gravisRead →
AdvocacyRSS3 days ago

St. Petersburg, FL MG Support Group

A support group for people with myasthenia gravis (MG), a rare condition where the immune system attacks muscles and causes weakness, is meeting in St. Petersburg, Florida. Support groups bring together patients and caregivers to share experiences, ask questions, and learn from each other about managing their condition.

WHY IT MATTERSIf you or a loved one has myasthenia gravis in the St. Petersburg area, this support group offers a chance to connect with others facing the same challenges and access local resources.
You can act on thismyasthenia gravisRead →
AdvocacyRSS3 days ago

PNW (Oregon and Washington) MG Support Group

A support group for people with myasthenia gravis (MG), a rare condition where the immune system attacks muscles and causes weakness, is meeting in the Pacific Northwest region covering Oregon and Washington. This group provides a place for patients and caregivers to connect, share experiences, and get support from others dealing with the same condition. Support groups like this help people feel less alone and learn practical tips for managing their disease.

WHY IT MATTERSThis is one of the few organized support communities specifically for myasthenia gravis patients in the Pacific Northwest, offering direct peer support and local resources that can improve quality of life and disease management.
You can act on thismyasthenia gravisRead →
AdvocacyRSS3 days ago

St. Petersburg, FL MG Support Group

A support group for people with myasthenia gravis (MG), a rare condition where the immune system weakens muscles, is meeting in St. Petersburg, Florida. Support groups bring together patients and caregivers to share experiences, ask questions, and learn from each other about managing their condition.

WHY IT MATTERSThis local support group provides St. Petersburg-area MG patients a chance to connect with others facing the same muscle weakness challenges and access peer support that can improve emotional well-being and disease management.
You can act on thismyasthenia gravisRead →
AdvocacyRSS3 days ago

St. Petersburg, FL MG Support Group

A support group for people with myasthenia gravis (MG), a rare condition where the immune system weakens muscles, is meeting in St. Petersburg, Florida. Support groups bring together patients and caregivers to share experiences, ask questions, and learn from each other about managing their condition.

WHY IT MATTERSIf you or a loved one has myasthenia gravis in the St. Petersburg area, this support group offers a chance to connect with others facing the same challenges and access local resources.
You can act on thismyasthenia gravisRead →
AdvocacyRSS3 days ago

St. Petersburg, FL MG Support Group

A support group for people with myasthenia gravis (MG), a rare condition where the immune system attacks muscles and causes weakness, is meeting in St. Petersburg, Florida. Support groups bring together patients and caregivers to share experiences, ask questions, and learn from each other about managing their condition.

WHY IT MATTERSThis local support group provides St. Petersburg-area MG patients with a chance to connect with others living with the same rare disease and access peer support that can improve emotional well-being and disease management.
You can act on thismyasthenia gravisRead →
AdvocacyRSS3 days ago

St. Petersburg, FL MG Support Group

A support group for people with myasthenia gravis (MG), a rare condition where the immune system weakens muscles, is meeting in St. Petersburg, Florida. Support groups bring together patients and caregivers to share experiences, ask questions, and learn from each other about managing their condition.

WHY IT MATTERSIf you or a loved one has myasthenia gravis in the St. Petersburg area, this support group offers a chance to connect with others facing the same challenges and access local resources.
You can act on thismyasthenia gravisRead →
NewsRSS3 days ago

When school is out, my sons with DMD get into their summer groove

A parent in rural Nebraska shares how their two sons with Duchenne muscular dystrophy (DMD) enjoy their summer break when school ends in mid-May. The article focuses on how the family adapts to seasonal changes and the boys' routines during warmer months. This is a personal story about managing life with DMD throughout the year.

WHY IT MATTERSParents of children with DMD can learn practical strategies for managing summer schedules and activities when school-based therapies and routines end.
Good to knowDuchenne muscular dystrophyRead →
NewsRSS3 days ago

We must each find our own way as we learn to live with ALS

A person living with ALS is sharing their experience about staying active and maintaining muscle strength. They were unsure whether to write about this topic because they worried people might misunderstand their message. The author emphasizes that everyone with ALS may need to find their own approach to managing the disease.

WHY IT MATTERSThis personal perspective helps ALS patients understand that maintaining mobility is individual—what works for one person may not work for another, so they shouldn't feel pressured to follow someone else's exact approach.
Good to knowAmyotrophic Lateral SclerosisRead →
AdvocacyRSS3 days ago

Delphine Andrews – Life coach and disability advocate with SMA

Delphine Andrews, a life coach and disability advocate from North Carolina who lives with SMA (spinal muscular atrophy), shared her personal story in a podcast interview. She discussed how she learned to accept herself, help others with disabilities, and build a career as a life coach. The episode also covered important topics like managing caregivers and understanding how different parts of someone's identity intersect.

WHY IT MATTERSHearing from someone living with SMA about practical strategies for self-acceptance, caregiver management, and career transition can help newly diagnosed patients and families navigate similar challenges in their own lives.
Good to knowspinal muscular atrophyRead →
ResearchPUBMED4 days ago

Linear Interstitial Keratitis - A Retrospective Chart Review of a Rare Entity.

Linear interstitial keratitis (LIK) is a very rare eye condition where a thin line of cloudiness forms in the clear part of the eye (the cornea). This study looked at 6 patients with this condition to better understand what it looks like, how doctors can diagnose it, and what treatments work best. The researchers found that the cloudy line usually appears near the edge of the cornea and can be seen clearly with special eye imaging tools.

WHY IT MATTERSThis is the largest study to date on linear interstitial keratitis, providing eye doctors with new guidance on diagnosis and treatment options for a condition that previously had no agreed-upon management approach.
💬 Ask your doctorLinear Interstitial KeratitisInterstitial KeratitisRead →
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