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2 articles from the last 30 days matching "Muscular Dystrophy, Duchenne"

AdvocacyRSSApr 30

CureDuchenne’s annual conference to highlight research, family support

CureDuchenne is hosting a four-day conference in Orlando from May 21-24 where families and patients with Duchenne and Becker muscular dystrophy can learn about the latest research, new treatments, and connect with others in the community. The event aims to provide education, support, and hope to people affected by these muscle-weakening conditions.

WHY IT MATTERSThis conference offers patients and families direct access to the latest research updates and treatment options for Duchenne and Becker muscular dystrophy, plus the chance to connect with others managing these progressive conditions.
ℹ Good to knowDuchenne muscular dystrophyBecker muscular dystrophy
AdvocacyRSSApr 29

With my mobility severely limited, I’m in dire need of a wheelchair

A person with facioscapulohumeral muscular dystrophy (FSHD), a progressive muscle disease, is sharing their experience of losing mobility and needing a wheelchair. FSHD gradually weakens muscles over time, but it's hard to predict how fast the disease will progress in each person. This person's situation was made more complicated by injuries from a car accident years ago that damaged their joints.

WHY IT MATTERSFSHD patients face unpredictable disease progression that can rapidly impact mobility and independence, making adaptive equipment planning and financial preparation for accessibility needs critical but difficult.
ℹ Good to knowFacioscapulohumeral muscular dystrophy

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