With my mobility severely limited, I’m in dire need of a wheelchair
WHY IT MATTERS
FSHD patients face unpredictable disease progression that can rapidly impact mobility and independence, making adaptive equipment planning and financial preparation for accessibility needs critical but difficult.
A person with facioscapulohumeral muscular dystrophy (FSHD), a progressive muscle disease, is sharing their experience of losing mobility and needing a wheelchair. FSHD gradually weakens muscles over time, but it's hard to predict how fast the disease will progress in each person. This person's situation was made more complicated by injuries from a car accident years ago that damaged their joints.
One problem dealing with a progressive disease like facioscapulohumeral muscular dystrophy (FSHD) is that there’s no way to predict the pace of disease progression. I think this is true for the aging process as well. In my case, it may also apply to the joint deterioration I’ve experienced following a horrifying automobile accident years ago. […] The post With my mobility severely limited, I’m in dire need of a wheelchair appeared first on Muscular Dystrophy News .