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NewsRSSThursday, May 21, 2026 · 2 days ago

The ALS community ‘could use a little mercy now’

WHY IT MATTERS

Caregivers of ALS patients often experience isolation and emotional burden—this story validates those experiences and may help others feel less alone in their caregiving journey.

This article shares a personal story from a caregiver whose husband Todd has ALS (a disease that causes paralysis and muscle weakness). While showering and caring for her husband, she discovered a song called 'Mercy Now' that resonated with the challenges the ALS community faces. The piece highlights the emotional and physical toll of living with ALS on both patients and their families.

As I prepared to shower my husband, Todd, who is paralyzed due to ALS, I asked his smart speaker to play “Hurt” by Johnny Cash, and after that finished, I asked it to play similar songs. As I shaved Todd’s head, a song I’d never heard before came through the speakers: “Mercy Now” by Mary […] The post The ALS community ‘could use a little mercy now’ appeared first on ALS News Today .

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Related conditions

Amyotrophic lateral sclerosis

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