How my husband and I try to teach our children well in life with ALS
WHY IT MATTERS
This story highlights the real-world caregiving burden that ALS families face daily, which can help other caregivers feel less isolated and find practical strategies for managing their own self-care while providing 24/7 support.
A caregiver shares her experience managing daily life while caring for her husband Todd, who has ALS (a disease that affects nerve cells and causes progressive muscle weakness). She describes the challenges of balancing her own activities, like a weekly ukulele group, with Todd's constant care needs, including help with eating, bathroom use, and computer setup. The article focuses on how the family navigates these challenges while raising their children.
Getting out of the house is always a challenge because my husband, Todd, has ALS and needs care almost 24/7. I never know if I’ll make it to my Monday night ukulele group. When I do, I’m usually rushing to feed Todd, help him in the bathroom, and get him set up at his computer. […] The post How my husband and I try to teach our children well in life with ALS appeared first on ALS News Today .