Wells syndrome

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ORPHA:901L98.3
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4Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Wells syndrome, also known as eosinophilic cellulitis, is a rare inflammatory skin condition. It causes episodes of swelling, redness, and itching that look a lot like a bacterial skin infection (cellulitis), but it is not caused by bacteria. Instead, the immune system overreacts and sends too many eosinophils — a type of white blood cell — into the skin. This causes inflammation and damage to the skin tissue. During a flare, the affected skin becomes red, warm, swollen, and sometimes blistered. Over days to weeks, the redness often fades to a greenish or brownish color, and the skin may feel firm or hardened. These episodes can come and go over months or years. Some people have just one episode in their lifetime, while others have repeated flares. Wells syndrome can affect people of any age, including children. It is often mistaken for other skin conditions, which can delay diagnosis. Treatment usually involves corticosteroids like prednisone, which help calm the immune response and clear up flares. Most people respond well to treatment, though flares can return. The condition is not life-threatening in most cases, but it can significantly affect quality of life.

Also known as:

Key symptoms:

Red, swollen, warm patches of skin that look like a skin infectionIntense itching or burning sensation on the skinBlisters or fluid-filled bumps on the affected skinSkin that turns greenish or brownish as the flare fadesFirm or hardened skin texture during or after a flareRecurring episodes of skin inflammationMild fever during a flare in some casesSwollen lymph nodes near the affected area in some casesGeneral feeling of being unwell during a flare

Clinical phenotype terms (9)— hover any for plain English
CellulitisHP:0100658Skin vesicleHP:0200037
Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Variable

Can begin at different ages, from infancy through adulthood

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Wells syndrome.

View clinical trials →

No actively recruiting trials found for Wells syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Wells syndrome community →

Specialists

4 foundView all specialists →
MM
Marcus Maurer, MD
PUEBLO, CO
Specialist
PI on 5 active trials
EM
Eric Hachulla, MD,PhD
Specialist
PI on 3 active trials
SM
Sara Alehashemi, M.D.
BETHESDA, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Wells syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Wells syndrome

No recent news articles for Wells syndrome.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What is causing my immune system to react this way, and is there an underlying trigger we should look for?,How do I know if my skin flare is Wells syndrome or a real bacterial infection that needs antibiotics?,What are the risks of long-term steroid use, and are there safer alternatives for preventing future flares?,How likely am I to have more flares, and what can I do to reduce that risk?,Should I see an allergist or immunologist in addition to a dermatologist?,Are there any lifestyle changes or things to avoid that might help prevent flares?,What should I do if a flare starts — do I need to go to the emergency room or can I manage it at home?

Common questions about Wells syndrome

What is Wells syndrome?

Wells syndrome, also known as eosinophilic cellulitis, is a rare inflammatory skin condition. It causes episodes of swelling, redness, and itching that look a lot like a bacterial skin infection (cellulitis), but it is not caused by bacteria. Instead, the immune system overreacts and sends too many eosinophils — a type of white blood cell — into the skin. This causes inflammation and damage to the skin tissue. During a flare, the affected skin becomes red, warm, swollen, and sometimes blistered. Over days to weeks, the redness often fades to a greenish or brownish color, and the skin may feel

How is Wells syndrome inherited?

Wells syndrome follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

Which specialists treat Wells syndrome?

4 specialists and care centers treating Wells syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.