What is Vibratory urticaria?
Vibratory urticaria does not yet have FDA-approved treatments tracked on UniteRare.
Also known as:
Key symptoms:
Hives (raised, red, itchy welts) appearing after vibrationSkin swelling (angioedema) at the site of vibrationRedness and warmth of the skinItching or burning sensationFlushing (face or body turning red)Headache after vibration exposureBlurry vision during a reactionFatigue or tiredness after a reactionLow blood pressure during severe reactionsRapid heartbeatNauseaSevere whole-body allergic reaction (anaphylaxis) in rare cases
- Inheritance
- Autosomal dominant
- Passed on from just one parent; each child has about a 50% chance of inheriting it
- Age of Onset
- Variable
- Can begin at different ages, from infancy through adulthood
Treatments
Source: openFDA + DailyMed · NDA / BLA labels with structured indications · refreshed weekly
No FDA-approved treatments are currently listed for Vibratory urticaria.
View clinical trials →Clinical Trials
View all trials with filters →Source: ClinicalTrials.gov · synced daily · phases, status, and PI names normalized at ingest
No actively recruiting trials found for Vibratory urticaria at this time.
New trials open frequently. Follow this disease to get notified.
Source: NPI Registry + PubMed · trial PI roles cross-referenced with ClinicalTrials.gov · ranked by match score (publications + PI activity + community signal)
Treatment Centers
8 centersSource: NORD Rare Disease Centers + NIH Undiagnosed Diseases Network (UDN) · centers verified active within last 12 months
Children's Hospital Colorado Rare Disease Program ↗
Children's Hospital Colorado
📍 Aurora, CO
👤 Boston Children's Hospital Rare Disease Program
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDBoston Children's Hospital Rare Disease Program ↗
Boston Children's Hospital
📍 Boston, MA
👤 Boston Children's Hospital Rare Disease Program
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
🏨 Children'sAnn & Robert H. Lurie Children's Hospital Genetics ↗
Lurie Children's Hospital
📍 Chicago, IL
👤 Boston Children's Hospital Rare Disease Program
🏥 NORDCincinnati Children's Hospital Medical Center ↗
Cincinnati Children's
📍 Cincinnati, OH
👤 Boston Children's Hospital Rare Disease Program
🏨 Children'sNationwide Children's Hospital Rare Disease Center ↗
Nationwide Children's Hospital
📍 Columbus, OH
👤 Boston Children's Hospital Rare Disease Program
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
Travel Grants
No travel grants are currently matched to Vibratory urticaria.
Community
No community posts yet. Be the first to share your experience with Vibratory urticaria.
Start the conversation →Latest news about Vibratory urticaria
Source: PubMed + NIH RePORTER + openFDA + clinical-journal RSS · last 30 days · disease-tagged at ingest by AI extraction with human QC
No recent news articles for Vibratory urticaria.
Follow this condition to be notified when news becomes available.
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Questions for your doctor
Bring these to your next appointment
- Q1.Should I have genetic testing to find out if my vibratory urticaria is the inherited type?,Which antihistamine is best for my situation, and how often should I take it?,Do I need to carry an EpiPen, and when exactly should I use it?,Are there any activities or jobs I should completely avoid?,Could omalizumab (Xolair) be a good option for me if antihistamines are not working well enough?,Should my family members be tested or evaluated for this condition?,Are there any clinical trials or new treatments I should know about?
Common questions about Vibratory urticaria
What is Vibratory urticaria?
Vibratory urticaria, also sometimes called vibratory angioedema or vibration-induced urticaria, is a rare skin condition where physical vibration triggers hives (raised, itchy welts) and swelling on the skin. When the skin is exposed to vibrating forces — like running, towel drying, clapping, riding a motorcycle, or even using a lawnmower — the immune system overreacts and releases chemicals like histamine. This causes redness, itching, swelling, and hives to appear within minutes of the vibrating stimulus. The condition can range from mildly annoying to seriously disabling. In some people, t
How is Vibratory urticaria inherited?
Vibratory urticaria follows a autosomal dominant inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
Which specialists treat Vibratory urticaria?
15 specialists and care centers treating Vibratory urticaria are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
Frequently asked questions about Vibratory urticaria
Auto-generated from canonical disease facts (Orphanet, OMIM, ClinicalTrials.gov, openFDA, NPPES). Not a substitute for clinical guidance.
What is Vibratory urticaria?
Vibratory urticaria is a rare disease catalogued in international rare-disease ontologies (Orphanet ORPHA:493342, OMIM 125630). It is typically inherited as autosomal dominant. Age of onset is generally variable. For verified primary sources, see the UniteRare Vibratory urticaria page.
How is Vibratory urticaria inherited?
Vibratory urticaria follows autosomal dominant inheritance. Genetic counseling is recommended for affected families to understand recurrence risk in offspring and the likelihood of unaffected siblings being carriers. Variants in the underlying gene(s) may be identified via clinical genetic testing.
Are there FDA-approved treatments for Vibratory urticaria?
Approved treatments for Vibratory urticaria are tracked from openFDA and DailyMed primary sources. Many rare diseases have no specific FDA-approved therapy; for those, supportive care and management of complications form the basis of clinical care. Orphan-drug-designation status is noted where applicable.
Are there clinical trials for Vibratory urticaria?
Active clinical trials for Vibratory urticaria are tracked daily from ClinicalTrials.gov. Trial availability changes frequently; check the UniteRare trial listings for the current count and recruitment status. Sponsors of rare-disease research often welcome inquiries even when a trial is not actively recruiting at a given moment.
How do I find a specialist for Vibratory urticaria?
UniteRare lists 15 verified clinicians with documented expertise in Vibratory urticaria, sourced from ClinicalTrials.gov principal-investigator records, PubMed publication histories, and the NPPES NPI registry. Filter by state or browse our state-specific specialist pages for nearby options.
See full Vibratory urticaria page for complete clinical details, sources, and verified-specialist listings.
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