Overview
Hereditary Angioedema is treated with 1 medication in our database, including Takhzyro. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Takeda. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hereditary Angioedema treatment below.
Also known as:
Autosomal dominant
Passed on from just one parent; each child has about a 50% chance of inheriting it
Childhood to adulthood
Can begin any time from childhood through adulthood
FDA & Trial Timeline
10 eventsIonis Pharmaceuticals, Inc. — PHASE3
Takeda
Takeda
Takeda
Takeda — NA
ADARx Pharmaceuticals, Inc. — PHASE3
Cardiovascular and Interventional Radiological Society of Europe
Takeda — NA
Pharvaris Netherlands B.V. — PHASE3
Astria Therapeutics, Inc. — PHASE3
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
12 availableSAJAZIR
indicated for the treatment of acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older
EKTERLY
indicated for the treatment of acute attacks of hereditary angioedema (HAE) in adult and pediatric patients aged 12 years and older
Ruconest
indicated for the treatment of acute attacks in adult and adolescent patients with hereditary angioedema (HAE)
Kalbitor
indicated for treatment of acute attacks of hereditary angioedema (HAE) in patients 12 years of age and older
Haegarda
For routine prophylaxis to prevent Hereditary Angioedema (HAE) attacks in adolescent and adult patients
ANDEMBRY
ANDEMBRY is indicated for prophylaxis to prevent attacks of hereditary angioedema (HAE) in adult and pediatric patients aged 12 years and older.
Orladeyo
ORLADEYO is indicated for prophylaxis to prevent attacks of hereditary angioedema (HAE) in adults and pediatric patients 2 years of age and older.
TAKHZYRO
indicated for prophylaxis to prevent attacks of hereditary angioedema (HAE) in adult and pediatric patients aged 2 years and older
Orladeyo
ORLADEYO is indicated for prophylaxis to prevent attacks of hereditary angioedema (HAE) in adults and pediatric patients 2 years of age and older.
DAWNZERA
indicated for prophylaxis to prevent attacks of hereditary angioedema (HAE) in adult and pediatric patients 12 years of age and older
Danazol
Danazol capsules are indicated for the prevention of attacks of angioedema of all types (cutaneous, abdominal, laryngeal) in males and females
ICATIBANT
indicated for the treatment of acute attacks of hereditary angioedema (HAE) in adults 18 years of age and older
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersWashington University School of Medicine
📍 St Louis, Missouri
👤 Meagan A Jacoby, M.D., Ph.D.
👤 Janssen Research & Development, LLC Clinical Trial
Washington University
📍 St Louis, Missouri
👤 Sawa M Ito, MD, PhD
👤 Anthony A. Amato, MD
West China Hospital, Sichuan University
📍 Chengdu, Sichuan
Hospital Italiano de Buenos Aires
📍 Buenos Aires, Buenos Aires
Clinical Trial Site
📍 Phoenix, Arizona
Charité - Universitätsmedizin Berlin
📍 Berlin
Peking Union Medical College Hospital
📍 Beijing, Beijing Municipality
Harvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
Financial Resources
9 resourcesGood Days — Hereditary angioedema
Good Days
Hereditary angioedema
HealthWell Foundation — Hereditary angioedema
HealthWell Foundation
Hereditary angioedema
NORD Patient Assistance — Hereditary angioedema
NORD Patient Assistance
Hereditary angioedema
Patient Services Inc — Hereditary angioedema
Patient Services Inc
Hereditary angioedema
The Assistance Fund — Hereditary angioedema
The Assistance Fund
Hereditary angioedema
PAN Foundation — Hereditary angioedema
PAN Foundation
Hereditary angioedema
6 travel grants are also available for Hereditary angioedema patients — see Travel Grants below ↓
Travel Grants
6 grantsHereditary Angioedema Financial Assistance Program
The Assistance Fund
Applicants must be U.S. citizens or permanent residents diagnosed with Hereditary Angioedema and prescribed an FDA-approved treatment with existing prescription coverage. Eligibility also requires meeting financial criteria based on household income and size, though specific thresholds are not listed.
Accessia Health: Hereditary Angioedema - Public Insurance
Accessia Health
Applicants must be residents of the US or Puerto Rico with public insurance (Medicare/Medicaid) and a diagnosis of hereditary angioedema. Eligibility is needs-based and requires submission of income documentation and a medical provider statement.
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4 articlesCaregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Hereditary angioedema
What is Hereditary angioedema?
Hereditary Angioedema is treated with 1 medication in our database, including Takhzyro. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Takeda. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hereditary Angioedema treatment below.
How is Hereditary angioedema inherited?
Hereditary angioedema follows a autosomal dominant inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
At what age does Hereditary angioedema typically begin?
Typical onset of Hereditary angioedema is childhood to adulthood. Age of onset can vary across affected individuals.
Are there clinical trials for Hereditary angioedema?
Yes — 20 recruiting clinical trials are currently listed for Hereditary angioedema on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Hereditary angioedema?
25 specialists and care centers treating Hereditary angioedema are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Hereditary angioedema?
1 FDA-approved treatment and 16 patient support programs are currently tracked on UniteRare for Hereditary angioedema. See the treatments and support programs sections for copay assistance, eligibility, and contact details.