Squamous cell carcinoma of the oral tongue

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:457252
Who is this for?
Show terms as
15Active trials45Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Squamous cell carcinoma of the oral tongue (sometimes called tongue cancer or oral tongue cancer) is a type of cancer that starts in the flat, thin cells lining the surface of the front two-thirds of the tongue — the part you can see when you stick your tongue out. This is different from cancer at the base of the tongue, which is considered part of the throat. It is one of the most common cancers found in the mouth. This cancer typically appears as a sore, lump, or white or red patch on the tongue that does not heal. It may cause pain, difficulty chewing or swallowing, changes in speech, or numbness in the tongue. As the tumor grows, it can spread to nearby lymph nodes in the neck and, in advanced cases, to other parts of the body. The main risk factors include tobacco use (smoking or chewing), heavy alcohol consumption, and poor oral hygiene. In some cases, no clear cause is found, and younger patients without traditional risk factors are increasingly being diagnosed. Treatment usually involves surgery to remove the tumor, sometimes combined with radiation therapy and chemotherapy. The specific treatment plan depends on the size and stage of the cancer. Early detection greatly improves outcomes, so any persistent sore or unusual change on the tongue lasting more than two to three weeks should be evaluated by a doctor or dentist.

Also known as:

Key symptoms:

A sore or ulcer on the tongue that does not healA lump or thickened area on the tongueWhite or red patches on the tongueTongue pain or sorenessDifficulty chewing foodDifficulty swallowingChanges in speech or slurred speechNumbness in the tongue or mouthBleeding from the tongue without clear causeEar pain on the same side as the tumorA lump or swelling in the neckUnexplained weight lossBad breath that does not go away

Inheritance

Multifactorial

Caused by a mix of several genes and environmental factors

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events
Jan 2026Postoperative Radiotherapy for Early-stage Oral Tongue Squamous Cell Carcinoma Patients With Risk Factors: a Prospective, Multicenter, Randomized Controlled, Open-labelled Trial

Second Affiliated Hospital, School of Medicine, Zhejiang University — NA

TrialRECRUITING
Jul 2025Dual-energy CT vs. MRI in the Evaluation of Squamous Cell Carcinomas of the Oral Cavity and Oropharynx

University Hospital, Strasbourg, France

TrialRECRUITING
Feb 2025People Living With HIV, Oral and Oropharyngeal Cancer, and Health Equity

University of California, San Francisco

TrialRECRUITING
Nov 2024Safety and Efficacy Study of PRV111 and PRV211 in Subjects With Oral Squamous Cell Carcinoma

Privo Technologies — PHASE2, PHASE3

TrialRECRUITING
Jun 2024A Study of Radiation Therapy After Surgery in People With Oral Tongue Squamous Cell Carcinoma

Memorial Sloan Kettering Cancer Center — PHASE2

TrialRECRUITING
Apr 2024Assessment of the Effect of Tumor Thickness and Site on Level IV Cervical Lymph Nodes in Squamous Cell Carcinoma of the Tongue and Floor of the Mouth: A Case Series Study

Cairo University — NA

TrialRECRUITING
Mar 2024SYsteMatical Trained learnIng aLgorithms for Oral carcInogenesiS Interpretation by Optical Coherence Tomography

University of Palermo

TrialRECRUITING
Nov 2023Neoadjuvant Anti-PD-1 Immunotherapy With Chemotherapy in Resectable Locally Advanced Oral Squamous Cell Carcinoma

Hospital of Stomatology, Wuhan University — PHASE3

TrialRECRUITING
Jun 2023Neoadjuvant Tislelizumab Plus Chemotherapy for Locally Advanced Oral/Oropharyngeal Cancer (NeoSPOT)

Peking University Hospital of Stomatology — PHASE2

TrialACTIVE NOT RECRUITING
May 2023Neoadjuvant Treatment of Tislelizumab Combined Chemotherapy for Locally Advanced Oral Squamous Cell Carcinoma :A Single-arm, Prospective, Phase II Trial

Weijia Fang, MD — PHASE2

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Squamous cell carcinoma of the oral tongue.

15 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

15 recruitingView all trials with filters →
Phase 31 trial
Neoadjuvant Anti-PD-1 Immunotherapy With Chemotherapy in Resectable Locally Advanced Oral Squamous Cell Carcinoma
Phase 3
Actively Recruiting
PI: Gang Chen, M.D. (Hospital of Stomatology, Wuhan University) · Sites: Shenzhen, Guangdong; Wuhan, Hubei +1 more · Age: 1870 yrs
Phase 25 trials
Neoadjuvant Tislelizumab Plus Chemotherapy for Locally Advanced Oral/Oropharyngeal Cancer (NeoSPOT)
Phase 2
Active
· Sites: Beijing, Beijing Municipality; Baoding, Hebei +11 more · Age: 1880 yrs
Neoadjuvant Personalized Anti-PD-1 and Anti-VEGFR Therapy in OSCC Patients
Phase 2
Actively Recruiting
PI: Lai-ping Zhong, MD, PhD (Ninth People's Hospital, Shanghai Jiao Tong Univer) · Sites: Shanghai, Shanghai Municipality · Age: 1875 yrs
Neoadjuvant Treatment of Tislelizumab Combined Chemotherapy for Locally Advanced Oral Squamous Cell Carcinoma :A Single-arm, Prospective, Phase II Trial
Phase 2
Actively Recruiting
· Sites: Hangzhou · Age: 1875 yrs
Neoadjuvant Sintilimab in Combination With Carboplatin and Nab-paclitaxel in Resectable Oral Cavity or Oropharyngeal Squamous Cell Carcinoma
Phase 2
Active
· Sites: Guangzhou, Guangdong; Guanzhou, Guangdong · Age: 1880 yrs
A Study of Radiation Therapy After Surgery in People With Oral Tongue Squamous Cell Carcinoma
Phase 2
Actively Recruiting
PI: Sean McBride, MD, PhD (Memorial Sloan Kettering Cancer Center) · Sites: Basking Ridge, New Jersey; Middletown, New Jersey +5 more · Age: 1899 yrs
N/A2 trials
"Ultra-High Frequency intraOral UltraSonography of the TONgue" (HOUSTON)
N/A
Actively Recruiting
· Sites: Pisa · Age: 1899 yrs
Postoperative Radiotherapy for Early-stage Oral Tongue Squamous Cell Carcinoma Patients With Risk Factors: a Prospective, Multicenter, Randomized Controlled, Open-labelled Trial
N/A
Actively Recruiting
· Sites: Bengbu, Anhui; Chaoyang, Beijing Municipality +26 more · Age: 1870 yrs
Other5 trials
TPExtreme Induced Chemotherapy Followed by Surgery and Radiotherapy in the Oral Carcinoma.
Actively Recruiting
· Sites: Changsha, Hunan · Age: 1865 yrs
People Living With HIV, Oral and Oropharyngeal Cancer, and Health Equity
Actively Recruiting
PI: Alexandra Hernandez Levenston, PhD, MPH (University of California, San Francisco) · Sites: San Francisco, California · Age: 1899 yrs
Detection of Oral and Throat Cancers Using OralViome Cancer Testing System
Actively Recruiting
PI: Cristina Julian, PhD (Viome) · Sites: New York, New York · Age: 1899 yrs
Dual-energy CT vs. MRI in the Evaluation of Squamous Cell Carcinomas of the Oral Cavity and Oropharynx
Actively Recruiting
· Sites: Strasbourg · Age: 1899 yrs
SYsteMatical Trained learnIng aLgorithms for Oral carcInogenesiS Interpretation by Optical Coherence Tomography
Actively Recruiting
PI: Vera Panzarella (University of Palermo) · Sites: Palermo · Age: 1899 yrs

Specialists

Showing 25 of 45View all specialists →
JM
Jean Lacau Saint Guily, MD
Specialist
PI on 1 active trial
RB
Richard L Bakst
NEW YORK, NY
Specialist
2 Squamous cell carcinoma of the oral tongue publications
PC
Philip J Coates
Specialist
6 Squamous cell carcinoma of the oral tongue publications
LW
Lixiao Wang
Specialist
5 Squamous cell carcinoma of the oral tongue publications
BE
Baris Erdogan
Specialist
4 Squamous cell carcinoma of the oral tongue publications
NA
Nima Attaran
Specialist
3 Squamous cell carcinoma of the oral tongue publications
MM
Mustafa Magan
Specialist
3 Squamous cell carcinoma of the oral tongue publications
KZ
Katarina Zborayova
Specialist
3 Squamous cell carcinoma of the oral tongue publications
AS
Amir Salehi
BOTHELL, WA
Specialist
2 Squamous cell carcinoma of the oral tongue publications
SG
Sivakumar Vadivel Gnanasundram
Specialist
2 Squamous cell carcinoma of the oral tongue publications
AE
Antoinette R Esce
NEW YORK, NY
Specialist
1 Squamous cell carcinoma of the oral tongue publication
JR
Jordan P Redemann
ALBUQUERQUE, NM
Specialist
1 Squamous cell carcinoma of the oral tongue publication
AB
Andrewe L Baca
GLENDALE, AZ
Specialist
1 Squamous cell carcinoma of the oral tongue publication
XG
Xiaolian Gu
Specialist
7 Squamous cell carcinoma of the oral tongue publications
NS
Nicola Sgaramella
Specialist
7 Squamous cell carcinoma of the oral tongue publications
KN
Karin Nylander
Specialist
7 Squamous cell carcinoma of the oral tongue publications
SF
Sandrine Faivre
Specialist
PI on 4 active trials1 Squamous cell carcinoma of the oral tongue publication
CF
Clifton D Fuller
HOUSTON, TX
Specialist
PI on 2 active trials9 Squamous cell carcinoma of the oral tongue publications
SG
Shirish Gadgeel
DETROIT, MI
Specialist
PI on 2 active trials

Treatment Centers

8 centers
⚗️ Trial Site

Banner University Medical Center - Tucson

📍 Tucson, Arizona

⚗️ Trial Site

Kingman Regional Medical Center

📍 Kingman, Arizona

⚗️ Trial Site

CHI Saint Vincent Cancer Center Hot Springs

📍 Hot Springs, Arkansas

⚗️ Trial Site

University of Arizona Cancer Center-North Campus

📍 Tucson, Arizona

⚗️ Trial Site

Cancer Center at Saint Joseph's

📍 Phoenix, Arizona

⚗️ Trial Site

NEA Baptist Memorial Hospital and Fowler Family Cancer Center - Jonesboro

📍 Jonesboro, Arkansas

⚗️ Trial Site

Mercy Hospital Fort Smith

📍 Fort Smith, Arkansas

⚗️ Trial Site

Fairbanks Memorial Hospital

📍 Fairbanks, Alaska

Travel Grants

No travel grants are currently matched to Squamous cell carcinoma of the oral tongue.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Squamous cell carcinoma of the oral tongueForum →

No community posts yet. Be the first to share your experience with Squamous cell carcinoma of the oral tongue.

Start the conversation →

Latest news about Squamous cell carcinoma of the oral tongue

Disease timeline:

New recruiting trial: A Study of Radiation Therapy After Surgery in People With Oral Tongue Squamous Cell Carcinoma

A new clinical trial is recruiting patients for Squamous cell carcinoma of the oral tongue

New recruiting trial: Postoperative Radiotherapy for Early-stage Oral Tongue Squamous Cell Carcinoma Patients With Risk Factors: a Prospective, Multicenter, Randomized Controlled, Open-labelled Trial

A new clinical trial is recruiting patients for Squamous cell carcinoma of the oral tongue

New recruiting trial: Window Trial of Fluorescently Labeled Panitumumab (Panitumumab-IRDye800) in Head and Neck Cancer

A new clinical trial is recruiting patients for Squamous cell carcinoma of the oral tongue

New recruiting trial: Assessment of the Effect of Tumor Thickness and Site on Level IV Cervical Lymph Nodes in Squamous Cell Carcinoma of the Tongue and Floor of the Mouth: A Case Series Study

A new clinical trial is recruiting patients for Squamous cell carcinoma of the oral tongue

New trial: Testing the Timing of Pembrolizumab Alone or With Chemotherapy as First Line Treatment and Maintenan

Phase PHASE3 trial recruiting. Biospecimen Collection

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What is the exact stage of my tongue cancer, and what does that mean for my treatment options?,Will I need surgery, radiation, chemotherapy, or a combination, and what are the risks of each?,How will treatment affect my ability to speak, eat, and swallow, and what rehabilitation is available?,Am I a candidate for immunotherapy or targeted therapy?,What is the chance that the cancer will come back, and how will you monitor for recurrence?,Are there clinical trials available that I should consider?,What support services are available for nutrition, speech therapy, and emotional well-being during and after treatment?

Common questions about Squamous cell carcinoma of the oral tongue

What is Squamous cell carcinoma of the oral tongue?

Squamous cell carcinoma of the oral tongue (sometimes called tongue cancer or oral tongue cancer) is a type of cancer that starts in the flat, thin cells lining the surface of the front two-thirds of the tongue — the part you can see when you stick your tongue out. This is different from cancer at the base of the tongue, which is considered part of the throat. It is one of the most common cancers found in the mouth. This cancer typically appears as a sore, lump, or white or red patch on the tongue that does not heal. It may cause pain, difficulty chewing or swallowing, changes in speech, or n

How is Squamous cell carcinoma of the oral tongue inherited?

Squamous cell carcinoma of the oral tongue follows a multifactorial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Squamous cell carcinoma of the oral tongue typically begin?

Typical onset of Squamous cell carcinoma of the oral tongue is adult. Age of onset can vary across affected individuals.

Are there clinical trials for Squamous cell carcinoma of the oral tongue?

Yes — 15 recruiting clinical trials are currently listed for Squamous cell carcinoma of the oral tongue on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Squamous cell carcinoma of the oral tongue?

25 specialists and care centers treating Squamous cell carcinoma of the oral tongue are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.