Squamous cell carcinoma of the colon

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ORPHA:423994C18.3C18.4C18.5
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27Specialists8Treatment centers5Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Squamous cell carcinoma of the colon is a very rare type of colon cancer. Most colon cancers are a type called adenocarcinoma, which starts in gland cells that line the colon. Squamous cell carcinoma, by contrast, starts in flat, skin-like cells that are only rarely found in the lining of the colon. Because of this, it is considered an unusual and uncommon form of colorectal cancer. It may also be referred to as colonic squamous cell carcinoma or primary squamous cell carcinoma of the colon. This cancer can develop in any part of the large intestine, including the cecum, ascending colon, transverse colon, descending colon, sigmoid colon, and other sections. Like other colon cancers, it can grow through the bowel wall and spread to nearby lymph nodes or distant organs such as the liver or lungs. Common symptoms include changes in bowel habits, blood in the stool, abdominal pain, unintended weight loss, and fatigue. Treatment typically involves surgery to remove the tumor, often combined with chemotherapy and sometimes radiation therapy. Because this cancer type is so rare, treatment is largely guided by approaches used for more common colon cancers and for squamous cell carcinomas found in other parts of the body. Early detection generally leads to better outcomes, but the rarity of this disease means that awareness and timely diagnosis can be challenging.

Key symptoms:

Blood in the stool or rectal bleedingChanges in bowel habits such as diarrhea or constipation lasting more than a few weeksAbdominal pain, cramping, or discomfortA feeling that the bowel does not empty completelyUnintended weight lossPersistent fatigue or weaknessNarrow or ribbon-like stoolsNausea or vomitingBloating or gasA lump or mass that can sometimes be felt in the abdomen

Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

FDA & Trial Timeline

6 events
Jan 2026A Phase 1, Multicenter Imaging Study of LNTH-2403 in Participants With Locally Advanced or Metastatic Solid Tumors.

Radiopharm Theranostics, Ltd — PHASE1

TrialNOT YET RECRUITING
Aug 2025Phase 1/2 Study to Evaluate TH9619 in the Treatment of Advanced Solid Tumors

One-carbon Therapeutics AB — PHASE1, PHASE2

TrialRECRUITING
Jun 2025A Clinical Trail of KJ015 in Patients With HER2-Expressing Solid Tumors

Shanghai Bao Pharmaceuticals Co., Ltd. — PHASE1

TrialNOT YET RECRUITING
Mar 2023Study of TU2218 in Combination With KEYTRUDA®(Pembrolizumab) in Patients With Advanced Solid Tumors

TiumBio Co., Ltd. — PHASE1, PHASE2

TrialRECRUITING
Jan 2021Patient Reported Outcomes Study Using Electronic Monitoring System for Advanced or Metastatic Solid Cancer

Comprehensive Support Project for Oncology Research — NA

TrialACTIVE NOT RECRUITING
Apr 2020A Study of SI-B001, an EGFR/HER3 Bispecific Antibody, in Locally Advanced or Metastatic Epithelial Tumors

Sichuan Baili Pharmaceutical Co., Ltd. — PHASE1

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Squamous cell carcinoma of the colon.

View clinical trials →

No actively recruiting trials found for Squamous cell carcinoma of the colon at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Squamous cell carcinoma of the colon community →

Specialists

Showing 25 of 27View all specialists →
AB
Aidan Burke
CAMBRIDGE, MA
Specialist
1 Squamous cell carcinoma of the colon publication
ML
Michael C Larkins
Specialist
1 Squamous cell carcinoma of the colon publication
AB
Arjun Bhatt
DALLAS, TX
Specialist
1 Squamous cell carcinoma of the colon publication
WI
William Irish
APO, AP
Specialist
1 Squamous cell carcinoma of the colon publication
KK
Katie N Kennedy
Specialist
1 Squamous cell carcinoma of the colon publication
KA
Kristen Armel
GREENVILLE, NC
Specialist
1 Squamous cell carcinoma of the colon publication
MH
Michael D Honaker
GREENVILLE, NC
Specialist
1 Squamous cell carcinoma of the colon publication
HN
Hussein Nassar
Specialist
1 Squamous cell carcinoma of the colon publication
KA
Karim Ataya
Specialist
1 Squamous cell carcinoma of the colon publication
BH
Bassel Hafez
IOWA CITY, IA
Specialist
1 Squamous cell carcinoma of the colon publication
AB
Ayman El Bsat
Specialist
1 Squamous cell carcinoma of the colon publication
LG
Luna Geagea
Specialist
1 Squamous cell carcinoma of the colon publication
WF
Walid Faraj
CHICO, CA
Specialist
1 Squamous cell carcinoma of the colon publication
EO
Eesha Oza
NASHVILLE, TN
Specialist
1 Squamous cell carcinoma of the colon publication
AM
Alain Mita
NEWPORT BEACH, CA
Specialist
PI on 1 active trial1 Squamous cell carcinoma of the colon publication
YR
Yashvi Rateshwar
Specialist
1 Squamous cell carcinoma of the colon publication
MM
Mary Feng, MD
SAN FRANCISCO, CA
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

5 resources

Stivarga

Bayer

Colon Cancer

Unverified — confirm before calling
copay card
Copay CardPatient Assistance
Accepting applications

OXALIPLATIN

Sanofi

Colon Cancer

Unverified — confirm before calling
copay card
Copay CardPatient Assistance
Accepting applications

ERBITUX

Eli Lilly

Colon Cancer

Unverified — confirm before calling
copay card
Copay CardPatient Assistance
Accepting applications

Avastin

Genentech

Colon Cancer

Unverified — confirm before calling
copay card
Copay CardPatient Assistance
Accepting applications

ZYNYZ

Incyte

Colon Cancer

Unverified — confirm before calling
copay card
Copay CardPatient Assistance
Accepting applications

Travel Grants

No travel grants are currently matched to Squamous cell carcinoma of the colon.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Squamous cell carcinoma of the colonForum →

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Latest news about Squamous cell carcinoma of the colon

Disease timeline:

New recruiting trial: Study of TU2218 in Combination With KEYTRUDA®(Pembrolizumab) in Patients With Advanced Solid Tumors

A new clinical trial is recruiting patients for Squamous cell carcinoma of the colon

New recruiting trial: Phase 1/2 Study to Evaluate TH9619 in the Treatment of Advanced Solid Tumors

A new clinical trial is recruiting patients for Squamous cell carcinoma of the colon

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What stage is my cancer, and what does that mean for my treatment options?,Has the cancer definitely started in my colon, and not spread from somewhere else in my body?,Should I have genetic testing to see if I have a hereditary condition that caused this cancer?,What are the goals of my treatment — is it aimed at curing the cancer or controlling it?,Are there any clinical trials I might be eligible for given how rare this cancer type is?,What side effects should I expect from surgery and chemotherapy, and how can they be managed?,How often will I need follow-up appointments and scans after treatment?

Common questions about Squamous cell carcinoma of the colon

What is Squamous cell carcinoma of the colon?

Squamous cell carcinoma of the colon is a very rare type of colon cancer. Most colon cancers are a type called adenocarcinoma, which starts in gland cells that line the colon. Squamous cell carcinoma, by contrast, starts in flat, skin-like cells that are only rarely found in the lining of the colon. Because of this, it is considered an unusual and uncommon form of colorectal cancer. It may also be referred to as colonic squamous cell carcinoma or primary squamous cell carcinoma of the colon. This cancer can develop in any part of the large intestine, including the cecum, ascending colon, tran

How is Squamous cell carcinoma of the colon inherited?

Squamous cell carcinoma of the colon follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Squamous cell carcinoma of the colon typically begin?

Typical onset of Squamous cell carcinoma of the colon is adult. Age of onset can vary across affected individuals.

Which specialists treat Squamous cell carcinoma of the colon?

25 specialists and care centers treating Squamous cell carcinoma of the colon are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Squamous cell carcinoma of the colon?

5 patient support programs are currently tracked on UniteRare for Squamous cell carcinoma of the colon. See the treatments and support programs sections for copay assistance, eligibility, and contact details.