Rare vascular disease

Last reviewed March 21, 2026

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ORPHA:68362

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27Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Rare vascular disease.

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Clinical Trials

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No actively recruiting trials found for Rare vascular disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Rare vascular disease community →

Specialists

Showing 25 of 27View all specialists →

MD

Matthew Krebs, Dr

Specialist

ALK-positive anaplastic large cell lymphoma Anaplastic thyroid carcinoma Bronchial neuroendocrine tumor+56 more

PI on 7 active trials

Active trials Directions Travel grants

AM

Amel Karaa, MD

BOSTON, MA

Specialist

Ehlers-Danlos syndrome Genetic cerebral small vessel disease Genetic skin vascular disorder+17 more

PI on 3 active trials

Active trials Directions Travel grants

MM

Manfred Boehm, M.D.

Bethesda, Maryland

Specialist

Rare Disease Specialist

Cerebral autosomal dominant arteriopathy-subcortical infarcts-leukoencephalopathy Congenital aortic valve stenosis Genetic multiple congenital anomalies/dysmorphic syndrome without intellectual disability+8 more

PI on 7 active trials

Active trials Directions Travel grants

CM

Cornelia D Cudrici, M.D.

BETHESDA, MD

Specialist

Atrophic papulosis Erythrokeratoderma ''en cocardes''Malignant atrophic papulosis+4 more

PI on 2 active trials

Active trials Directions Travel grants

MP

Marcelo Serra, PhD

Buenos Aires, Buenos Aires

Specialist

Rare Disease Specialist

Adrenogenital syndrome Autoimmune lymphoproliferative syndrome Congenital adrenal hyperplasia+62 more

PI on 1 active trial

Active trials Directions Travel grants

SM

Soledad Kleppe, MD

Specialist

Adrenogenital syndrome Autoimmune lymphoproliferative syndrome Congenital adrenal hyperplasia+62 more

PI on 1 active trial

Active trials Directions Travel grants

TM

Tammuella Chrisentery-Singleton, MD

Phoenix, Arizona

Specialist

Rare Disease Specialist

Congenital factor X deficiency Genetic skin vascular disorder Hemophilia B+17 more

PI on 2 active trials

Active trials Directions Travel grants

MM

Michael Recht, MD, PhD, MBA

CLEVELAND, OH

Specialist

Congenital factor X deficiency Genetic skin vascular disorder Hemophilia B+17 more

PI on 1 active trial

Active trials Directions Travel grants

MP

Maria Lourdes Posadas Martinez, PhD

Specialist

Adrenogenital syndrome Autoimmune lymphoproliferative syndrome Congenital adrenal hyperplasia+61 more

PI on 1 active trial

Active trials Directions Travel grants

EP

elif polat

Specialist

Myopericytoma Rare neoplastic disease Rare skin disease+4 more

PI on 1 active trial5 Rare vascular disease publications

Active trials Directions Travel grants

MM

Michael Heinrich, MD

Specialist

Acute mast cell leukemia Angiosarcoma Benign schwannoma+62 more

PI on 1 active trial

Active trials Directions Travel grants

MM

Marcelo J Amar, M.D.

BETHESDA, MD

Specialist

Adult-onset leukoencephalopathy with axonal spheroids and pigmented glia Rare dyslipidemia

PI on 2 active trials

Active trials Directions Travel grants

PM

Paolo Ferroli, MD

Specialist

Choroid plexus carcinoma Ependymal tumor Mixed neuronal-glial tumor+4 more

PI on 1 active trial

Active trials Directions Travel grants

RP

Ronald J Triolo, Ph.D.

Cleveland, Ohio

Specialist

Rare Disease Specialist

Rare circulatory system disease Spinal cord injury

PI on 1 active trial

Active trials Directions Travel grants

MP

Musa L Audu, Ph.D.

Specialist

Rare circulatory system disease

PI on 1 active trial

Active trials Directions Travel grants

MM

Michael N Sack, M.D.

SPEARFISH, SD

Specialist

Coronary artery congenital malformation Genetic cardiac tumor Genetic obesity+15 more

PI on 3 active trials

Active trials Directions Travel grants

AM

Alessandro Ricci, MD

Specialist

Choroid plexus carcinoma Ependymal tumor Mixed neuronal-glial tumor+4 more

PI on 1 active trial1 Rare vascular disease publication

Active trials Directions Travel grants

NM

Nick Hopkins, M.D.

Specialist

Rare circulatory system disease Rare neurologic disease

PI on 1 active trial

Active trials Directions Travel grants

RM

Richard Green, M.D.

Specialist

Rare circulatory system disease Rare neurologic disease

PI on 1 active trial

Active trials Directions Travel grants

MP

Marie-camille CHAUMAIS, PharmaD, PHD

Specialist

Chronic thromboembolic pulmonary hypertension Rare pulmonary disease Rare pulmonary hypertension+1 more

PI on 1 active trial

Active trials Directions Travel grants

JM

Jaysinghe Yadav, M.D.

Specialist

Rare circulatory system disease Rare neurologic disease

PI on 1 active trial

Active trials Directions Travel grants

RM

Rod Raabe, M.D.

SPOKANE, WA

Specialist

Rare circulatory system disease Rare neurologic disease

PI on 1 active trial

Active trials Directions Travel grants

SM

Stan Barnwell, M.D.

PORTLAND, OR

Specialist

Rare circulatory system disease Rare neurologic disease

PI on 1 active trial

Active trials Directions Travel grants

MM

Mark Wholey, M.D.

Specialist

Rare circulatory system disease Rare neurologic disease

PI on 1 active trial

Active trials Directions Travel grants

RM

Ronald Fairman, M.D.

PHILADELPHIA, PA

Specialist

Rare circulatory system disease Rare neurologic disease

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Rare vascular disease.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Rare vascular disease

No recent news articles for Rare vascular disease.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Rare vascular disease

Which specialists treat Rare vascular disease?

25 specialists and care centers treating Rare vascular disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.