Overview
FDA & Trial Timeline
2 eventsMaastricht Radiation Oncology — NA
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
No FDA-approved treatments are currently listed for Rare epilepsy.
2 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.
View clinical trials →Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersCincinnati Children's Hospital Medical Center
📍 Cincinnati, Ohio
Stanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🏥 NORDBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
Financial Resources
7 resourcesDepakote Sprinkles
AbbVie
Epilepsy
Lamotrigine
Endo USA, Inc.
Epilepsy
Valproic
AbbVie
Epilepsy
Depakote ER
AbbVie
Epilepsy
LAMICTAL XR
GlaxoSmithKline
Epilepsy
Topamax
Janssen
Epilepsy
Carbamazepine ER
Novartis
Epilepsy
Travel Grants
No travel grants are currently matched to Rare epilepsy.
Community
No community posts yet. Be the first to share your experience with Rare epilepsy.
Start the conversation →Latest news about Rare epilepsy
Disease timeline:
New trial: ESIS in Pediatric DRE
Phase NA trial recruiting.
New trial: Precision Radiation Treatment for Epilepsy (PRECISION)
Phase NA trial recruiting. LINAC-based Stereotactic Radiotherapy
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Rare epilepsy
Are there clinical trials for Rare epilepsy?
Yes — 2 recruiting clinical trials are currently listed for Rare epilepsy on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Rare epilepsy?
9 specialists and care centers treating Rare epilepsy are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Rare epilepsy?
7 patient support programs are currently tracked on UniteRare for Rare epilepsy. See the treatments and support programs sections for copay assistance, eligibility, and contact details.