Overview
FDA & Trial Timeline
3 eventsNational Taiwan Normal University — NA
University of Texas at Austin — NA
Nova Scotia Health Authority — PHASE4
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
No FDA-approved treatments are currently listed for Rare dementia.
3 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.
View clinical trials →Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Financial Resources
1 resourcesColcrys
AR Holding Company, Inc.
Colcrys — Contact AR Holding Company, Inc.
Travel Grants
No travel grants are currently matched to Rare dementia.
Community
No community posts yet. Be the first to share your experience with Rare dementia.
Start the conversation →Latest news about Rare dementia
Disease timeline:
New trial: Community Health Worker-Led Transition Support for Persons Living With Dementia and Caregivers
Phase NA trial recruiting. Community Health Worker (CHW) Guided Support
New trial: The Benefits of Nostalgia-Based Virtual Reality Brain Health Interventions on Nostalgia Tendencies,
Phase NA trial recruiting. Brain Health Nostalgic VR Program
New trial: Lemborexant for Insomnia in a Patient With Dementia: An N-of-1 Trial
Phase PHASE4 trial recruiting. Lemborexant 5 MG
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Rare dementia
Are there clinical trials for Rare dementia?
Yes — 3 recruiting clinical trials are currently listed for Rare dementia on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Rare dementia?
6 specialists and care centers treating Rare dementia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Rare dementia?
1 patient support program are currently tracked on UniteRare for Rare dementia. See the treatments and support programs sections for copay assistance, eligibility, and contact details.