Primary hepatic neuroendocrine carcinoma

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ORPHA:100085C22.7
Who is this for?
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6Specialists8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Clinical phenotype terms— hover any for plain English:

BronchoconstrictionHP:4000007Neoplasm of the liverHP:0002896Neuroendocrine neoplasmHP:0100634Chronic fatigueHP:0012432Hepatic cystsHP:0001407Hepatic encephalopathyHP:0002480Increased serum serotoninHP:0003144
Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Dec 1995

Ethyol: FDA approved

To reduce the cumulative renal toxicity associated with repeated administration of cisplatin in patients with advanced ovarian cancer.

FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Primary hepatic neuroendocrine carcinoma.

View clinical trials →

No actively recruiting trials found for Primary hepatic neuroendocrine carcinoma at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Primary hepatic neuroendocrine carcinoma community →

Specialists

6 foundView all specialists →
HT
Hussein A Tawbi
HOUSTON, TX
Specialist
PI on 2 active trials
VM
Vivek Subbiah, MD
STANFORD, CA
Specialist
PI on 2 active trials
RM
Raymond Bergan, MD
CHICAGO, IL
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources

Ethyol

Medimmune Oncology, Inc.

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copay card
copay assistancePatient Assistance
Accepting applications

Travel Grants

No travel grants are currently matched to Primary hepatic neuroendocrine carcinoma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Primary hepatic neuroendocrine carcinoma

No recent news articles for Primary hepatic neuroendocrine carcinoma.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Primary hepatic neuroendocrine carcinoma

Which specialists treat Primary hepatic neuroendocrine carcinoma?

6 specialists and care centers treating Primary hepatic neuroendocrine carcinoma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Primary hepatic neuroendocrine carcinoma?

1 patient support program are currently tracked on UniteRare for Primary hepatic neuroendocrine carcinoma. See the treatments and support programs sections for copay assistance, eligibility, and contact details.