Primary adrenal insufficiency

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:101958
Who is this for?
Show terms as
29Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Primary adrenal insufficiency.

View clinical trials →

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Primary adrenal insufficiency at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Primary adrenal insufficiency community →

Specialists

Showing 25 of 29View all specialists →
SM
Stefanie Hahner, MD
Specialist
PI on 2 active trials
GP
Gudmundur Johannsson, Professor
Specialist
PI on 2 active trials2 Primary adrenal insufficiency publications
SP
Stylianos Tsagarakis, Professor
Specialist
PI on 1 active trial
MM
Mitchell S Cairo, MD
HAWTHORNE, NY
Specialist
PI on 12 active trials
PM
Paal Methlie, MD
Specialist
PI on 1 active trial
SP
Sophie Bensing, MD phD
Specialist
PI on 1 active trial
VP
Valentina Morelli, PHD
Specialist
PI on 1 active trial
SP
Stefanie Hahner, MD, Prof.
Specialist
PI on 3 active trials
RR
R Ross
Specialist
PI on 1 active trial91 Primary adrenal insufficiency publications
JP
Julie D Saba, MD, PhD
OAKLAND, CA
Specialist
PI on 2 active trials
SP
Stafford Lightman, Professor
Specialist
PI on 1 active trial
KP
Kristian Løvås, MD, PhD
Specialist
PI on 4 active trials
AP
Andrea M Isidori, MD, PhD
Specialist
PI on 5 active trials
KM
Kristian Løvås, MD,PhD
Specialist
PI on 1 active trial
MB
Maria Forss, MSc BA
Specialist
PI on 1 active trial9 Primary adrenal insufficiency publications
AP
Anna G Nilsson, MD, PhD
Specialist
PI on 1 active trial
KP
Katerina Simunkova, MD, PhD
Specialist
PI on 1 active trial
BM
Biljana Horn, MD
SAN FRANCISCO, CA
Specialist
PI on 2 active trials
MM
Markus Weber, MD
Specialist
PI on 1 active trial
MP
Michel Polak, MD, PhD
Specialist
PI on 3 active trials
CP
Chi Hornik, PharmD
DURHAM, NC
Specialist
PI on 1 active trial
EM
Eystein S Husebye, Prof, MD
Specialist
PI on 1 active trial
GM
Gudmundur Johannsson, Prof., MD
Specialist
PI on 1 active trial
EM
Ernst A Lien, Prof. MD.
Specialist
PI on 1 active trial
SM
Simon H Pearce, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Primary adrenal insufficiency.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Primary adrenal insufficiencyForum →

No community posts yet. Be the first to share your experience with Primary adrenal insufficiency.

Start the conversation →

Latest news about Primary adrenal insufficiency

No recent news articles for Primary adrenal insufficiency.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Primary adrenal insufficiency

Which specialists treat Primary adrenal insufficiency?

25 specialists and care centers treating Primary adrenal insufficiency are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.