Overview
Polycythemia Vera is treated with 1 medication in our database, including BESREMi. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by PharmaEssentia. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Polycythemia Vera treatment below.
Also known as:
Clinical phenotype terms— hover any for plain English:
FDA & Trial Timeline
10 eventsOno Pharmaceutical Co. Ltd — PHASE3
Duan Minghui — NA
Federico II University
Hospices Civils de Lyon — NA
MPN Research Foundation — NA
Chengdu Zenitar Biomedical Technology Co., Ltd — PHASE2
Disc Medicine, Inc — PHASE2
BeBetter Med Inc — PHASE1
Fondazione Policlinico Universitario Agostino Gemelli IRCCS — NA
iOMEDICO AG
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
2 availableJAKAFI
treatment of polycythemia vera in adults who have had an inadequate response to or are intolerant of hydroxyurea
Besremi
Treatment of adults with polycythemia vera
Rare Disease Specialist
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Financial Resources
2 resources1 travel grant are also available for Polycythemia vera patients — see Travel Grants below ↓
Travel Grants
1 grantsSusan Lang Pay-It Forward Patient Travel Assistance Programs
Leukemia & Lymphoma Society
Assistance is available for patients diagnosed with Myeloproliferative Neoplasms (MPNs) to cover costs for medication co-pays, travel to cancer centers, and health insurance premiums. Eligibility generally requires a valid diagnosis of an MPN, such as myelofibrosis or polycythemia vera, and vary by individual program provider.
Community
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1 articlesCaregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Polycythemia vera
What is Polycythemia vera?
Polycythemia Vera is treated with 1 medication in our database, including BESREMi. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by PharmaEssentia. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Polycythemia Vera treatment below.
Are there clinical trials for Polycythemia vera?
Yes — 20 recruiting clinical trials are currently listed for Polycythemia vera on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.
Which specialists treat Polycythemia vera?
25 specialists and care centers treating Polycythemia vera are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Polycythemia vera?
1 FDA-approved treatment and 1 patient support program are currently tracked on UniteRare for Polycythemia vera. See the treatments and support programs sections for copay assistance, eligibility, and contact details.