Nipah virus disease

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ORPHA:99825A98.8
Who is this for?
Show terms as
1FDA treatments39Specialists8Treatment centers1Financial resources

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Nipah feverNipah encephalitis

Clinical phenotype terms— hover any for plain English:

Personality changesHP:0000751Infectious encephalitisHP:0002383Recurrent pharyngitisHP:0100776
Orphanet ↗NORD ↗

FDA & Trial Timeline

10 events
Jan 2026Impact of Home Non Invasive Ventilation in Patients With Chronic Obstructive Pulmonary Disease Discharged From Assiut University Hospital

Assiut University — NA

TrialNOT YET RECRUITING
Jan 2026High-Flow Nasal Cannula Versus Noninvasive Ventilation After Extubation in Patients With COPD and Mild Hypercapnic Respiratory Failure

Assiut University — NA

TrialACTIVE NOT RECRUITING
Oct 2025Respiratory Stabilization in Chronic Acidosis Before Bronchofiberoscopy & Non-Invasive Ventilation Effectivenes

Medical University of Silesia — NA

TrialNOT YET RECRUITING
Sep 2025A New Portable Device for Non-invasive Ventilatory Support

Università Vita-Salute San Raffaele — NA

TrialRECRUITING
Sep 2025Respiratory Muscles in End-stage Lung Disease: Pathophysiological Processes & Clinical Consequences

University Medical Center Groningen

TrialNOT YET RECRUITING
Aug 2025Evaluation of the Effects on Carbon Dioxide (paCO2) of a New Oronasal Mask in Patients With Severe COPD Exacerbation Requiring Non-Invasive Mechanical Ventilation

IRCCS Azienda Ospedaliero-Universitaria di Bologna — NA

TrialNOT YET RECRUITING
Jul 2025Value of Volume Oxygenation Index to Detect Early Failure of Non-invasive Ventilation in Acute Exacerbation of Chronic Obstructive Pulmonary Disease

Assiut University

TrialNOT YET RECRUITING
Mar 2025Mathematical Analysis of Signals and Clinical Parameters Provided by Non-invasive Home Ventilation Devices

Corporacion Parc Tauli

TrialRECRUITING
Mar 2025Variation in Viscoelastic Properties of Pulmonary Mucus in Patients Undergoing Mechanical Ventilation

Centre Hospitalier Intercommunal Aix-Pertuis

TrialRECRUITING
Jan 2025Assessment of Breathing Pattern During NIV

Fisher and Paykel Healthcare — NA

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

Actemra

tocilizumab· Genentech, Inc.■ Boxed Warning
indicated for the treatment of coronavirus disease 2019 (COVID-19) in hospitalized adult and pediatric patients aged 2 years and older who are receiving systemic corticosteroids and require supplement…

indicated for the treatment of coronavirus disease 2019 (COVID-19) in hospitalized adult and pediatric patients aged 2 years and older who are receiving systemic corticosteroids and require supplemental oxygen, non-invasive or invasive mechanical ventilation, or extracorporeal membrane oxygenation (ECMO)

View Details →FDA Label ↗Patient Assistance ↗

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Nipah virus disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Nipah virus disease community →

Specialists

Showing 25 of 39View all specialists →
MM
Maxime Patout, MD
Specialist
PI on 2 active trials
CM
Carlos Fierro, MD
MONROVIA, CA
Specialist
PI on 3 active trials
KD
Klaus Kenn, Prof. Dr.
Specialist
PI on 4 active trials
TM
Thomas P Monath, MD
HARVARD, MA
Specialist
PI on 1 active trial
NH
Nicholas Hart
RALSTON, NE
Specialist
PI on 1 active trial4 Nipah virus disease publications
LM
Lesia K Dropulic, M.D.
BALTIMORE, MD
Specialist
PI on 2 active trials
DW
Dariusz Wozniak
Specialist
PI on 2 active trials1 Nipah virus disease publication
TF
Thomas Monath, MD, FASTMH
HARVARD, MA
Specialist
PI on 1 active trial
GM
Gray P Heppner, MD
Specialist
PI on 1 active trial1 Nipah virus disease publication
ID
Inderpaul Singh Sehgal, MD DM
Specialist
PI on 1 active trial
JP
Joerg Steier, PhD
Specialist
PI on 2 active trials
CM
Christophe BAILLARD, MD,PhD
Specialist
PI on 1 active trial
NP
Nicholas Hart, PhD
RALSTON, NE
Specialist
PI on 1 active trial
TM
Tuba YILMAZ BULUT, Msc
Specialist
PI on 1 active trial
LM
Leo GRASSION, MD
Specialist
PI on 1 active trial1 Nipah virus disease publication
TM
Thibaut Gentina, MD
Specialist
PI on 1 active trial
NF
Nicholas Barrett, FCICM
Specialist
PI on 1 active trial
LP
Luigi Camporota, PhD
Specialist
PI on 1 active trial
GM
Georg Nilius, MD
Specialist
PI on 2 active trials1 Nipah virus disease publication
CM
Carme Puy, MD
Specialist
PI on 1 active trial
SB
Sophie Blouet
Specialist
PI on 1 active trial
VM
Vijay Hadda, MD
Specialist
PI on 1 active trial
AP
Antoine Cuvelier, MD, PhD
Specialist
PI on 1 active trial
İP
İlknur AYDIN AVCİ, Prof.
Specialist
PI on 1 active trial
YD
Yasemin ÇEKİÇ, Dr.
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources
Actemra(tocilizumab)— Genentech, Inc.

Travel Grants

No travel grants are currently matched to Nipah virus disease.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Nipah virus diseaseForum →

No community posts yet. Be the first to share your experience with Nipah virus disease.

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Latest news about Nipah virus disease

Disease timeline:

New recruiting trial: Mathematical Analysis of Signals and Clinical Parameters Provided by Non-invasive Home Ventilation Devices

A new clinical trial is recruiting patients for Nipah virus disease

New recruiting trial: Efficacy of Morphine in Reducing the Rate of Early Non-Invasive Ventilation Failure in Acute Exacerbation of Chronic Obstructive Pulmonary Disease, Phase I/IIa

A new clinical trial is recruiting patients for Nipah virus disease

New recruiting trial: A New Portable Device for Non-invasive Ventilatory Support

A new clinical trial is recruiting patients for Nipah virus disease

New recruiting trial: Variation in Viscoelastic Properties of Pulmonary Mucus in Patients Undergoing Mechanical Ventilation

A new clinical trial is recruiting patients for Nipah virus disease

New recruiting trial: Randomized Controlled Study of Programmed Weaning From NIV for AECOPD

A new clinical trial is recruiting patients for Nipah virus disease

New recruiting trial: Assessment of Breathing Pattern During NIV

A new clinical trial is recruiting patients for Nipah virus disease

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Nipah virus disease

Which specialists treat Nipah virus disease?

25 specialists and care centers treating Nipah virus disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.