Neuroendocrine tumor of the colon

Last reviewed March 21, 2026

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ORPHA:100080C18.8

Who is this for?

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18Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Also known as:

Neuroendocrine neoplasm of the colon NET of the colon Colonic NET

Clinical phenotype terms— hover any for plain English:

BronchoconstrictionHP:4000007Carcinoid tumorHP:0100570Bloody diarrheaHP:0025085Hypoactive bowel soundsHP:0030144Atypical pulmonary carcinoid tumorHP:0030446MelenaHP:0002249Increased serum serotoninHP:0003144Protracted diarrheaHP:0004385Facial telangiectasiaHP:0007380Bowel urgencyHP:0012701

Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events

Jan 2017PIBD-SETQuality: the Inception Cohort and Safety Registry

PIBD-Net

TrialRECRUITING

Dec 2007A Phase I, Open-Label, Multi-center Study to Assess the Safety, Tolerability and Pharmacokinetics of AZD6244 (ARRY-142886)

AstraZeneca — PHASE1

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Neuroendocrine tumor of the colon.

View clinical trials →

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Neuroendocrine tumor of the colon at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Neuroendocrine tumor of the colon community →

Specialists

18 foundView all specialists →

MD

Matthew Krebs, Dr

Specialist

ALK-positive anaplastic large cell lymphoma Anaplastic thyroid carcinoma Bronchial neuroendocrine tumor+56 more

PI on 7 active trials

Active trials Directions Travel grants

MM

Margaret von Mehren

Specialist

Angiosarcoma Carcinosarcoma of the corpus uteri Carney complex+12 more

PI on 4 active trials1 Neuroendocrine tumor of the colon publication

Active trials Directions Travel grants

SM

Sunil Sharma, MD

Specialist

Adenocarcinoma of the cervix uteri Cancer of unknown primary site Chromophobe renal cell carcinoma+10 more

PI on 5 active trials

Active trials Directions Travel grants

VC

Vincent Chung

DUARTE, CA

Specialist

Acinar cell carcinoma of pancreas Adenocarcinoma of the cervix uteri Adult hepatocellular carcinoma+8 more

PI on 6 active trials

Active trials Directions Travel grants

SM

Steven A Rosenberg, M.D.

Specialist

Acquired cystic disease-associated renal cell carcinoma Adenoma of pancreas Adult hepatocellular carcinoma+12 more

PI on 19 active trials

Active trials Directions Travel grants

JC

Jeremie Calais

LOS ANGELES, CA

Specialist

Adenocarcinoma of the cervix uteri Adenocarcinoma of the penis Cancer of unknown primary site+16 more

PI on 4 active trials

Active trials Directions Travel grants

OM

Oliver Dorigo, MD

STANFORD, CA

Specialist

Adult hepatocellular carcinoma Malignant germ cell tumor of ovary Malignant non-epithelial tumor of ovary+3 more

PI on 1 active trial

Active trials Directions Travel grants

ZM

Zequn Tang, MD

Specialist

Adenocarcinoma of the anal canal Adenocarcinoma of the penis Carcinoma of the anal canal+21 more

PI on 1 active trial

Active trials Directions Travel grants

SH

Sebastien Hotte

Specialist

Anaplastic astrocytoma Anaplastic ependymoma Anaplastic oligodendroglioma+14 more

PI on 1 active trial

Active trials Directions Travel grants

MM

Melissa Reimers, M.D.

SAINT LOUIS, MO

Specialist

Neuroendocrine neoplasm of esophagus

PI on 1 active trial

Active trials Directions Travel grants

SM

Shivaani Kummar, M.D.

PORTLAND, OR

Specialist

Neuroendocrine tumor of the small intestine

PI on 1 active trial

Active trials Directions Travel grants

MM

Markus Jorger, MD

Specialist

PI on 1 active trial

Active trials Directions Travel grants

DP

Diane Beatty, PhD

LAURA, OH

Specialist

PI on 1 active trial

Active trials Directions Travel grants

RM

Rahul A Sheth, MD

HOUSTON, TX

Specialist

Melanoma of soft tissue

PI on 1 active trial

Active trials Directions Travel grants

JW

Jeffrey Wong

Specialist

Adult hepatocellular carcinoma Carcinoma of gallbladder and extrahepatic biliary tract Carcinoma of liver and intrahepatic biliary tract+6 more

PI on 1 active trial

Active trials Directions Travel grants

LM

Luca Mazzarella

Specialist

PI on 1 active trial

Active trials Directions Travel grants

MM

Mark O'Hara, MD

WARREN, OH

Specialist

Mucolipidosis type II

PI on 2 active trials

Active trials Directions Travel grants

CP

Carmina Valle, PhD

Specialist

Bone sarcoma Germ cell tumor of testis Gonadal germ cell tumor+7 more

PI on 1 active trial

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Neuroendocrine tumor of the colon.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Neuroendocrine tumor of the colon

Disease timeline:

New recruiting trial: PIBD-SETQuality: the Inception Cohort and Safety Registry

A new clinical trial is recruiting patients for Neuroendocrine tumor of the colon

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Neuroendocrine tumor of the colon

Which specialists treat Neuroendocrine tumor of the colon?

18 specialists and care centers treating Neuroendocrine tumor of the colon are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.