Microcystic lymphatic malformation

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ORPHA:79490D18.1
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1Active trials19Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Capillary lymphangiomaCapillary lymphatic malformationCutaneous lymphangioma circumscriptumMicrocystic infiltrating lymphatic malformationMicrocystic lymphangiomaSuperficial lymphangiomaSuperficial lymphatic malformation
Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Jul 2024SELVA: A Phase 3 Study Evaluating QTORIN 3.9% Rapamycin Anhydrous Gel in the Treatment of Microcystic Lymphatic Malformations

Palvella Therapeutics, Inc. — PHASE3

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Microcystic lymphatic malformation.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →
Phase 31 trial
SELVA: A Phase 3 Study Evaluating QTORIN 3.9% Rapamycin Anhydrous Gel in the Treatment of Microcystic Lymphatic Malformations
Phase 3
Active
PI: Joyce Teng (Stanford University) · Sites: Irvine, California; Palo Alto, California +13 more · Age: 3–99 yrs
View on ClinicalTrials.gov ↗I'm interested →

Specialists

19 foundView all specialists →
TI
Tinte Itinteang
Specialist
1 Microcystic lymphatic malformation publication
DG
Dominik Geisel
Specialist
1 Microcystic lymphatic malformation publication
TW
Thula Cannon Walter-Rittel
Specialist
1 Microcystic lymphatic malformation publication
HW
Huaijie Wang
Specialist
1 Microcystic lymphatic malformation publication
CX
Chong Xie
JACKSONVILLE, FL
Specialist
1 Microcystic lymphatic malformation publication
WL
Weilong Lin
Specialist
1 Microcystic lymphatic malformation publication
JZ
Jinbang Zhou
Specialist
1 Microcystic lymphatic malformation publication
WY
Weijia Yang
Specialist
1 Microcystic lymphatic malformation publication
ZG
Zhengtuan Guo
Specialist
1 Microcystic lymphatic malformation publication
SM
Shreeja Mehrotra
Specialist
1 Microcystic lymphatic malformation publication
BS
Bede van Schaijik
Specialist
1 Microcystic lymphatic malformation publication
KB
Kendra Boyes
Specialist
1 Microcystic lymphatic malformation publication
NB
Nicholas Bockett
Specialist
1 Microcystic lymphatic malformation publication
HB
Helen D Brasch
Specialist
1 Microcystic lymphatic malformation publication
PD
Paul F Davis
Specialist
1 Microcystic lymphatic malformation publication
DM
Denise M Adams, MD
Specialist
PI on 1 active trial
JT
Joyce Teng
PALO ALTO, CA
Specialist
PI on 1 active trial
AS
Ann (Annie) W Silk
Los Angeles, California
Specialist

Rare Disease Specialist

PI on 1 active trial
AM
Annabel MARUANI, MD-PhD
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Microcystic lymphatic malformation.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Microcystic lymphatic malformation

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Microcystic lymphatic malformation

Are there clinical trials for Microcystic lymphatic malformation?

Yes — 1 recruiting clinical trial is currently listed for Microcystic lymphatic malformation on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Microcystic lymphatic malformation?

19 specialists and care centers treating Microcystic lymphatic malformation are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.