Livedoid vasculopathy

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:542643L95.0
Who is this for?
Show terms as
25Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Livedo racemosaHP:0033260Varicose veinsHP:0002619Enlargement of the anklesHP:0003029Abnormality of complement systemHP:0005339Hyperpigmented streaksHP:0007572Lower limb painHP:0012514Abnormal capillary morphologyHP:0025016
Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Feb 2022Botulinum Toxin in Raynaud's Phenomenon

Emory University — PHASE4

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Livedoid vasculopathy.

View clinical trials →

No actively recruiting trials found for Livedoid vasculopathy at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Livedoid vasculopathy community →

Specialists

25 foundView all specialists →
AM
Aman Sharma, MD
Specialist
PI on 1 active trial1 Livedoid vasculopathy publication
DM
Darshan S Bhakuni, MD
Specialist
PI on 1 active trial
PD
Parasar Ghosh, MD, DM
Specialist
PI on 1 active trial
SM
Steven Kesten, MD
Specialist
PI on 1 active trial
JP
Janet E Pope
HAMPTON, VA
Specialist
PI on 2 active trials15 Livedoid vasculopathy publications
SM
Scott D Lifchez, MD
BALTIMORE, MD
Specialist
PI on 1 active trial
FM
Fernando V Andrigueti, MD
Specialist
PI on 1 active trial
JM
Juerg Hafner, Prof, MD
Specialist
PI on 1 active trial
AF
Ariane E Herrick, MD, FRCP
Specialist
PI on 1 active trial
RM
Robyn T Domsic, MD
PITTSBURGH, PA
Specialist
PI on 2 active trials
JM
Janet E Pope, MD, MPH
HAMPTON, VA
Specialist
PI on 1 active trial
LM
Laura K Hummers, MD
BALTIMORE, MD
Specialist
PI on 1 active trial1 Livedoid vasculopathy publication
WD
Wade Benton, Pharm D
Specialist
PI on 2 active trials
MM
Michael W Neumeister, MD
SPRINGFIELD, IL
Specialist
PI on 1 active trial
BT
Bruce Thompson
Specialist
PI on 2 active trials21 Livedoid vasculopathy publications
VD
Vikas Agarwal, MD, DM
SAINT JOSEPH, MO
Specialist
PI on 1 active trial
CM
Carin Dugowson, MD, MPH
SEATTLE, WA
Specialist
PI on 1 active trial
SD
Study Department
Specialist
PI on 1 active trial31 Livedoid vasculopathy publications
BM
Barbara Troupin, MD, MBA
MOUNTAIN VIEW, CA
Specialist
PI on 1 active trial1 Livedoid vasculopathy publication
MM
M Baumaker, MD
Specialist
PI on 1 active trial
LM
Leslie Klaff, MD
RENTON, WA
Specialist
PI on 1 active trial1 Livedoid vasculopathy publication
RM
Robert Levy, MD
Specialist
PI on 1 active trial
PM
Paul A Ghareeb, MD
ATLANTA, GA
Specialist
PI on 1 active trial
SP
Sophie Blaise, MD, PhD
Specialist
PI on 1 active trial
AM
Anne Laumann, MBChB, MRCP
CANAAN, NH
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Livedoid vasculopathy.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Livedoid vasculopathyForum →

No community posts yet. Be the first to share your experience with Livedoid vasculopathy.

Start the conversation →

Latest news about Livedoid vasculopathy

Disease timeline:

New recruiting trial: Botulinum Toxin in Raynaud's Phenomenon

A new clinical trial is recruiting patients for Livedoid vasculopathy

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Livedoid vasculopathy

Which specialists treat Livedoid vasculopathy?

25 specialists and care centers treating Livedoid vasculopathy are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.