Genetic corneal dystrophy

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ORPHA:522560
Who is this for?
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30Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Genetic corneal dystrophy.

View clinical trials →

No actively recruiting trials found for Genetic corneal dystrophy at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Genetic corneal dystrophy community →

Specialists

Showing 25 of 30View all specialists →
JP
Jorge L Alio, MD, PhD
Specialist
PI on 1 active trial
UJ
Ula Jurkunas
BOSTON, MA
Specialist
PI on 1 active trial
EM
Esben Nielsen, MD
Specialist
PI on 1 active trial
JM
Justis P Ehlers, MD
CLEVELAND, OH
Specialist
PI on 3 active trials
IP
Igor Volotovski, Prof
Specialist
PI on 1 active trial
LP
Liudmila Marchenko, Prof
Specialist
PI on 1 active trial
JM
James F Hejtmancik, M.D.
Specialist
PI on 2 active trials
ZK
Zinaida Kvacheva
Specialist
PI on 2 active trials
JP
Joost J van den Oord, MD, PhD
Specialist
PI on 1 active trial
KM
Katarzyna Witkowska, MD
Specialist
PI on 1 active trial
EO
Erhan Okuyan
Specialist
PI on 1 active trial4 Genetic corneal dystrophy publications
FM
Francis W Price, Jr, MD
Specialist
PI on 5 active trials
RP
Roberto Pineda
BOSTON, MA
Specialist
PI on 1 active trial
TT
Thomas Tremblay
Specialist
PI on 2 active trials1 Genetic corneal dystrophy publication
EM
Emma Davies, MD
BOSTON, MA
Specialist
PI on 1 active trial
VM
Valeria Sanchez Huerta, MD
MIDLAND, TX
Specialist
PI on 1 active trial
SM
Sila E Bal, MD, MPH
HONOLULU, HI
Specialist
PI on 1 active trial
ED
Emma E Davies
BOSTON, MA
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Genetic corneal dystrophy.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Genetic corneal dystrophyForum →

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Latest news about Genetic corneal dystrophy

No recent news articles for Genetic corneal dystrophy.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Genetic corneal dystrophy

Which specialists treat Genetic corneal dystrophy?

25 specialists and care centers treating Genetic corneal dystrophy are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.