Genetic chronic primary adrenal insufficiency

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:101960
Who is this for?
Show terms as
4Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Genetic chronic primary adrenal insufficiency.

View clinical trials →

No actively recruiting trials found for Genetic chronic primary adrenal insufficiency at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Genetic chronic primary adrenal insufficiency community →

Specialists

4 foundView all specialists →
PM
Paul Szabolcs, MD
Pittsburgh, Pennsylvania
Specialist

Rare Disease Specialist

PI on 7 active trials
BM
Biljana Horn, MD
SAN FRANCISCO, CA
Specialist
PI on 2 active trials
CP
Chi Hornik, PharmD
DURHAM, NC
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Genetic chronic primary adrenal insufficiency.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Genetic chronic primary adrenal insufficiencyForum →

No community posts yet. Be the first to share your experience with Genetic chronic primary adrenal insufficiency.

Start the conversation →

Latest news about Genetic chronic primary adrenal insufficiency

No recent news articles for Genetic chronic primary adrenal insufficiency.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Genetic chronic primary adrenal insufficiency

Which specialists treat Genetic chronic primary adrenal insufficiency?

4 specialists and care centers treating Genetic chronic primary adrenal insufficiency are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.