Congenital pulmonary veins anomaly

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:98729
Who is this for?
Show terms as
2Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events
Jul 2025Empiric Pulsed Field Pulmonary Vein Isolation During Atrial Tachycardia Ablation in Adults With Congenital Heart Disease

Boston Children's Hospital — NA

TrialNOT YET RECRUITING
Nov 2013Searching for Explanations for Cryptogenic Stroke in the Young: Revealing the Etiology, Triggers, and Outcome

SECRETO Study Consortium

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Congenital pulmonary veins anomaly.

View clinical trials →

Clinical Trials

View all trials with filters →

No actively recruiting trials found for Congenital pulmonary veins anomaly at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Congenital pulmonary veins anomaly community →

Specialists

2 foundView all specialists →
KP
Karim Wahbi, MD, PhD
Specialist
PI on 4 active trials
AM
Andrew McGovern, MD
Specialist
PI on 6 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Congenital pulmonary veins anomaly.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Congenital pulmonary veins anomalyForum →

No community posts yet. Be the first to share your experience with Congenital pulmonary veins anomaly.

Start the conversation →

Latest news about Congenital pulmonary veins anomaly

No recent news articles for Congenital pulmonary veins anomaly.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Congenital pulmonary veins anomaly

Which specialists treat Congenital pulmonary veins anomaly?

2 specialists and care centers treating Congenital pulmonary veins anomaly are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.