Anti-p200 pemphigoid

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Overview

Anti-p200 pemphigoid is a rare autoimmune blistering skin disease. In this condition, the body's immune system mistakenly attacks a protein called laminin gamma-1 (also known as the p200 antigen), which is found at the junction between the outer layer of skin (epidermis) and the deeper layer (dermis). This attack causes the layers of skin to separate, leading to the formation of tense blisters and widespread itchy, red skin lesions. The disease is sometimes also called anti-laminin gamma-1 pemphigoid. Patients typically develop tense fluid-filled blisters on the skin that can appear on the trunk, arms, legs, and sometimes the hands and feet. The blisters may resemble those seen in bullous pemphigoid, but anti-p200 pemphigoid is distinguished by the specific antibody target. Some patients also develop lesions on mucous membranes, such as the mouth. Itching can be severe and significantly affect quality of life. Treatment usually involves medications that suppress the immune system to reduce blister formation. First-line therapy often includes systemic corticosteroids such as prednisone, sometimes combined with steroid-sparing agents like dapsone, mycophenolate mofetil, or azathioprine. Many patients respond well to treatment, though the disease can be chronic and may relapse. Because this condition is so rare, treatment approaches are largely based on case reports and small case series rather than large clinical trials.

Key symptoms:

Tense fluid-filled blisters on the skinIntense itchingRed or inflamed patches of skinBlisters on the hands and feetBlisters on the trunk, arms, and legsHive-like raised red patches (urticarial plaques)Mouth sores or blisters in some casesSkin erosions where blisters have broken openCrusting of skin lesionsScarring in some cases

Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Anti-p200 pemphigoid.

View clinical trials →

No actively recruiting trials found for Anti-p200 pemphigoid at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Anti-p200 pemphigoid community →

No specialists are currently listed for Anti-p200 pemphigoid.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Anti-p200 pemphigoid.

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Community

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Caregiver Resources

NORD Caregiver Resources

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Mental Health Support

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Family & Caregiver Grants

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Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.How was the diagnosis of anti-p200 pemphigoid confirmed, and what tests were done?,What treatment options do you recommend, and what are the potential side effects?,How long will I need to take medication, and can the disease go into remission?,What should I do if I develop new blisters or signs of a flare while on treatment?,Are there any activities or triggers I should avoid to prevent flare-ups?,How often will I need blood tests or follow-up visits to monitor my condition and medications?,Should I see any other specialists in addition to my dermatologist?

Common questions about Anti-p200 pemphigoid

What is Anti-p200 pemphigoid?

Anti-p200 pemphigoid is a rare autoimmune blistering skin disease. In this condition, the body's immune system mistakenly attacks a protein called laminin gamma-1 (also known as the p200 antigen), which is found at the junction between the outer layer of skin (epidermis) and the deeper layer (dermis). This attack causes the layers of skin to separate, leading to the formation of tense blisters and widespread itchy, red skin lesions. The disease is sometimes also called anti-laminin gamma-1 pemphigoid. Patients typically develop tense fluid-filled blisters on the skin that can appear on the tr

How is Anti-p200 pemphigoid inherited?

Anti-p200 pemphigoid follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Anti-p200 pemphigoid typically begin?

Typical onset of Anti-p200 pemphigoid is adult. Age of onset can vary across affected individuals.