Epidermolysis bullosa acquisita

Last reviewed

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ORPHA:46487L12.3
Who is this for?
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2Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Inflammation of the large intestineHP:0002037
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Epidermolysis bullosa acquisita.

View clinical trials →

No actively recruiting trials found for Epidermolysis bullosa acquisita at this time.

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Search ClinicalTrials.gov ↗Join the Epidermolysis bullosa acquisita community →

Specialists

2 foundView all specialists →
MM
Matt P Marinkovich, MD
STANFORD, CA
Specialist
PI on 2 active trials
KG
Kenneth B. Gordon
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Epidermolysis bullosa acquisita.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Epidermolysis bullosa acquisita

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Epidermolysis bullosa acquisita

Which specialists treat Epidermolysis bullosa acquisita?

2 specialists and care centers treating Epidermolysis bullosa acquisita are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.