ERN-EuroBloodNet Registry on Patients With Rare Red Blood Cell Defects and COVID-19
Studying Alpha-thalassemia
Last synced from ClinicalTrials.gov
Key facts
- Sponsor
- Hospital Universitari Vall d'Hebron Research Institute
- Principal Investigator
- María del Mar Mañú Pereira, PhDVall d'Hebron Institut de Recerca, Barcelona (Spain) and ERN-EuroBloodNet
- Intervention
- Non applicable, is a patient registry(other)
- Enrollment
- 684 enrolled
- Eligibility
- All sexes
- Timeline
- 2020 – 2023
Study locations (1)
- Vall d'Hebron Institut de Recerca, Barcelona, Barcelona, Spain
Collaborators
European Georges Pompidou Hospital · Hospital General Universitario Gregorio Marañon · Hospital Vall d'Hebron · Unidade Local de Saúde de Coimbra, EPE · University Hospital Freiburg · Azienda Ospedaliera di Padova · Hôpital Necker-Enfants Malades · Guy's and St Thomas' NHS Foundation Trust · Erasme University Hospital · Aghia Sophia Children's Hospital of Athens · Cyprus Institute of Neurology and Genetics · University Hospital Heidelberg · Children's Health Ireland · San Luigi Gonzaga Hospital · Oxford University Hospitals NHS Trust · UMC Utrecht · General Hospital of Athens Elpis · Amsterdam UMC · Brno University Hospital · Azienda Ospedaliera Ospedali Riuniti Villa Sofia Cervello · University Hospital, Gentofte, Copenhagen · Institute of Hematology and Blood Transfusion, Czech Republic · Universitaire Ziekenhuizen KU Leuven · Palacky University
Primary source
Recruitment status, site addresses, contacts, and full eligibility criteria can change between syncs. Always verify with the trial team before planning travel or treatment.
Open NCT06831799 on ClinicalTrials.govOther trials for Alpha-thalassemia
Additional recruiting or active studies for the same condition.
- RECRUITINGNCT06591936Genetic Profile of Alpha Thalassemia Children at Sohag University Hospital .Sohag University
- RECRUITINGNANCT06539169FLOWER: Following Longitudinal Outcomes With Epidemiology for Rare DiseasesxCures
- RECRUITINGEARLY PHASE1NCT06107400Safety and Efficacy of RM-004 Cells for Hemoglobin H-Constant Spring DiseaseThe 923rd Hospital of Joint Logistics Support Force of People's Liberation Army
- RECRUITINGPHASE2NCT05664737A Study to Determine the Efficacy and Safety of Luspatercept in Adult Participants and to Evaluate the Safety and Pharmacokinetics in and Adolescent Participants With Alpha (α)-ThalassemiaBristol-Myers Squibb
- ACTIVE NOT RECRUITINGPHASE3NCT04770753A Study Evaluating the Efficacy and Safety of Mitapivat in Participants With Non-Transfusion-Dependent Alpha- or Beta-Thalassemia (α- or β-NTDT)Agios Pharmaceuticals, Inc.
- ACTIVE NOT RECRUITINGPHASE3NCT04770779A Study Evaluating the Efficacy and Safety of Mitapivat in Participants With Transfusion-Dependent Alpha- or Beta-Thalassemia (α- or β-TDT)Agios Pharmaceuticals, Inc.
- ACTIVE NOT RECRUITINGNANCT02692872Screening for Alpha Thalassemia in Healthy VolunteersNational Institute of Allergy and Infectious Diseases (NIAID)
- RECRUITINGNCT04872179International Registry of Patients With Alpha ThalassemiaUniversity of California, San Francisco