International CDKL5 Registry

Key facts

Sponsor

University of Pennsylvania

Principal Investigator

Dan Lavery, PhD, MD

Director, CDKL5 Program of Excellence, Orphan Disease Center

Intervention

Survey Instrument(other)

Enrollment

500 enrolled

Eligibility

All sexes

Timeline

2018 – 2028

Study locations (1)

• University of Pennsylvania Orphan Disease Center, Philadelphia, Pennsylvania, United States

Primary source

Recruitment status, site addresses, contacts, and full eligibility criteria can change between syncs. Always verify with the trial team before planning travel or treatment.

Other trials for CDKL5-deficiency disorder

Additional recruiting or active studies for the same condition.

• RECRUITINGNANCT06448663
  Targeting the Gut to Improve Seizure Control in CDKL5 Deficiency Disorder (CDD)
  University of Milan
• ACTIVE NOT RECRUITINGNCT05373719
  Observational Study in Patients With Cyclin-dependent Kinase-like 5 Deficiency Disorder
  Loulou Foundation
• ACTIVE NOT RECRUITINGPHASE3NCT05064878
  A Study to Investigate the Efficacy and Safety of ZX008 in Subjects With CDKL5 Deficiency Disorder
  Zogenix, Inc.
• RECRUITINGNCT05558371
  International CDKL5 Clinical Research Network
  University of Colorado, Denver

See all trials for CDKL5-deficiency disorder →