Active, not recruitingNCT05373719

Observational Study in Patients With Cyclin-dependent Kinase-like 5 Deficiency Disorder

Studying CDKL5-deficiency disorder

Last synced from ClinicalTrials.gov May 8, 2026

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Key facts

Sponsor: Loulou Foundation
Intervention: No intervention; observational(other)
Enrollment: 112 enrolled
Eligibility: 55 years · All sexes
Timeline: 2022 – 2027

Study locations (22)

UCLA Mattel Children's Hospital, Los Angeles, California, United States
Children's Hospital Colorado, Aurora, Colorado, United States
Center for Rare Neurological Diseases, Norcross, Georgia, United States
Boston Children's Hospital, Boston, Massachusetts, United States
New York University, New York, New York, United States
Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, United States
The Cleveland Clinic, Cleveland, Ohio, United States
Childrens Hospital of Philadlephia Division of Neurology, Philadelphia, Pennsylvania, United States
Baylor College of Medicine, Houston, Texas, United States
Alberta Children's Hospital, Pediatric Epilepsy and Child Neurology, Calgary, Canada
The Hospital of Sick Children, Toronto, Canada
Hopital Necker- Enfants Malades, Paris, France
DRK Berlin - Epilepsiezentrum und Neuropädiatrie, Berlin, Germany
Schön Klinik Vogtareuth, Vogtareuth, Germany
Azienda Ospedaliero-Universitaria Meyer, Florence, Italy
+7 more locations on ClinicalTrials.gov

Primary source

Recruitment status, site addresses, contacts, and full eligibility criteria can change between syncs. Always verify with the trial team before planning travel or treatment.

Open NCT05373719 on ClinicalTrials.gov

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