NewsRSS3 days ago
This article invites people to take a quiz about clinical trials for HDFN (hemolytic disease of the fetus and newborn), which is a serious blood condition that affects unborn babies and newborns. After completing the quiz, you can see how your answers compare to other people who took it. The article doesn't provide new trial information, but rather encourages learning about existing trials through an interactive quiz.
WHY IT MATTERSTaking this quiz helps patients and caregivers understand what clinical trials are available for HDFN, which is important since treatment options and trial availability can directly affect care decisions for affected pregnancies and newborns.
Clinical trialRSS3 days ago
A new medication called Vyalev helped people with Parkinson's disease stop experiencing unwanted, uncontrolled movements (called dyskinesia) when they switched to it from other Parkinson's drugs. In two clinical trials, most people saw these troublesome movements go away within a few months of starting Vyalev. This is good news because dyskinesia is a common side effect that happens after taking Parkinson's medications for a long time.
WHY IT MATTERSIf you have Parkinson's disease and experience dyskinesia from your current levodopa treatment, switching to Vyalev could eliminate these involuntary movements within months rather than managing them as a permanent side effect.
AdvocacyRSS3 days ago
Three organizations that work with facioscapulohumeral muscular dystrophy (FSHD) patients are joining together to make clinical trials better. FSHD is a rare muscle disease that causes weakness in the face, shoulders, and upper arms. This partnership wants to improve how these trials are designed so they can test new treatments more effectively.
WHY IT MATTERSBetter-designed clinical trials mean faster progress toward treatments for FSHD, and patient input through the FSHD Society ensures trials are structured in ways that actually work for people living with the disease.