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2 articles from the last 30 days matching "TOR1AIP1-related limb-girdle muscular dystrophy"

AdvocacyRSS4 days ago

To me, a wheelchair is a symbol of improved function, not disability

A person with a muscular dystrophy explains how using a wheelchair has improved their quality of life and ability to participate in daily activities. Rather than viewing the wheelchair as a symbol of disability, they see it as a tool that gives them more independence and function. The article challenges common misconceptions about wheelchairs and disability.

WHY IT MATTERSThis perspective piece helps patients with muscular dystrophy and other mobility conditions understand that mobility aids like wheelchairs can expand independence rather than limit it, which may help reduce stigma and encourage earlier adoption of helpful devices.
Good to knowMuscular DystrophyRead →
AdvocacyRSS4 days ago

Navigating disability benefits for muscular dystrophy

When muscular dystrophy makes it hard to work, you may qualify for disability benefits that provide money and health insurance. This article explains how to navigate the process of getting these public benefits so you don't lose financial stability. Understanding your options can help you manage living with MD while keeping some independence.

WHY IT MATTERSPeople with muscular dystrophy who can no longer work need to know how to access disability benefits and medical coverage to avoid financial hardship during disease progression.
💬 Ask your doctorMuscular DystrophyRead →

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